May 20, 2016
BENEFITING: DANNY DID FOUNDATION
ORGANIZER: DANNY DID FOUNDATION
EVENT DATE: May 18, 2016
There was this boy, who called me mom. And he stole my heart.
My son Nathan was 13 years old when he passed away from SUDEP. He loved playing baseball, listening to music, drawing and hanging out with his older sister. His life was cut short. He will never go to a prom, graduate, go to college, or get married. I miss him every moment of everyday.
Shortly after he passed away, I started doing research on SUDEP. Epilepsy runs in our family, my daughter is 19 and takes medication every day. Yet, I had never heard of SUDEP before. Why didn't doctors warn me of this danger? I stumbled across the Danny Did Foundation and read Danny's story.
I thought to myself, if I didn't know about it, I wonder how many other people didn't know? I decided in that moment that I was going to do anything I can to raise awareness. I hold fundraisers, and spread the word every chance I get. Proceeds are donated to Danny Did Foundation in Nathan's honor.
I know my boy watches over me, and is proud of what I am doing. I know he lives on in me. And his memory will always live on in the work I do.
Please take a moment and donate anything you can. Nathan's birthday is May 20th, he would have been 17. My goal is to raise $520. (5/20)
DANNY DID FOUNDATION wrote -
“Please Go and Enjoy Your Life . . . Danny Did.” Those were the last words of Danny Stanton's obituary, written by his dad, after Danny died suddenly following a seizure in his sleep. He was just three months shy of his fifth birthday. Danny had epilepsy, one of the oldest and most mysterious ailments. Rooted in the organ most responsible for our very humanity — the brain — it can cause seizures that come without warning, at any time, in many different forms. Yet Danny's family had never been informed about a critical risk for people who face seizures: Sudden Unexpected Death in Epilepsy (SUDEP).
WHY: To carry on Danny’s place in the world, the Danny Did Foundation (DDF) works towards its mission to prevent deaths caused by seizures. Every $1,000 raised for Danny Did in the 2016 Art Van Charity Challenge will fund seizure detection monitors for two families in need. The major impact of these devices is two-fold: parents gain the peace of mind of knowing that they will be alerted to a convulsive seizure and will have the chance to assist their loved one. At the same time, the person utilizing the device gains the added safety of a time-sensitive intervention during a seizure.
IMPACT: By reaching our goal to raise $30,000, we can provide at least 60 new families with a monitoring device. The DDF has funded monitoring devices for families spanning 48 states and 8 countries. As awareness has spread about the value of these resources, the number of requests for funding support to Danny Did has skyrocketed. Your donation will help us to meet this need! Please read about the life-changing impact of this program here.
Please donate today to protect the 1 in 26 Americans will who face epilepsy! Through this program, Danny Stanton continues to help others, just as this sweet boy would do if he were alive today.