June 08, 2016
BENEFITING: DANNY DID FOUNDATION
ORGANIZER: DANNY DID FOUNDATION
EVENT DATE: May 18, 2016
My journey with Epilepsy began my freshman year of college in 2012. I went into status epilepticus and spent a week in the ICU at Christ Hospital in Chicago, IL. From there, I began having several grand mal seizures a week and was barely able to finish my first semester of college. From then on, I have had many ICU stays, multiple hospital visits, countless ER visits, injuries from seizures, and problems from hospitalizations. I've tried several medications and dosages with numerous side effects, and have even VNS surgery. Throughout the first few years learning about Epilepsy, I felt alone. My friends and family were there for me but I never had anyone around me that actually understood my fears and obstacles in a way that made sense to them. Luckily, I found hope through the Danny Did Foundation. When they heard about my story, they stepped up right away to help me. They provided me with information, resources, a community that I could connect with, and even helped me to obtain a bed alarm so that I would no longer have to worry about no one at school noticing if I had a seizure in my sleep. It was the first time since starting college that I felt secure enough to sleep in a bed by myself. From this point on, I have become a College Student Ambassador for the Danny Did Foundation and have given a presentation to my nursing class at school on seizures and Epilepsy. I have attended the Hearts and Hugs fundraiser and have learned more about Danny and his incredible family who started the Danny Did Foundation. The Danny Did Foundation is truly remarkable and I hope you will take just a moment to read about what they do and why they do it, and consider donating to help us reach our goal to help others. Thank you!
DANNY DID FOUNDATION
“Please Go and Enjoy Your Life . . . Danny Did.” Those were the last words of Danny Stanton's obituary, written by his dad, after Danny died suddenly following a seizure in his sleep. He was just three months shy of his fifth birthday. Danny had epilepsy, one of the oldest and most mysterious ailments. Rooted in the organ most responsible for our very humanity — the brain — it can cause seizures that come without warning, at any time, in many different forms. Yet Danny's family had never been informed about a critical risk for people who face seizures: Sudden Unexpected Death in Epilepsy (SUDEP).
WHY: To carry on Danny’s place in the world, the Danny Did Foundation (DDF) works towards its mission to prevent deaths caused by seizures. Every $1,000 raised for Danny Did in the 2016 Art Van Charity Challenge will fund seizure detection monitors for two families in need. The major impact of these devices is two-fold: parents gain the peace of mind of knowing that they will be alerted to a convulsive seizure and will have the chance to assist their loved one. At the same time, the person utilizing the device gains the added safety of a time-sensitive intervention during a seizure.
IMPACT: By reaching our goal to raise $30,000, we can provide at least 60 new families with a monitoring device. The DDF has funded monitoring devices for families spanning 48 states and 8 countries. As awareness has spread about the value of these resources, the number of requests for funding support to Danny Did has skyrocketed. Your donation will help us to meet this need! Please read about the life-changing impact of this program here.
Please donate today to protect the 1 in 26 Americans will who face epilepsy! Through this program, Danny Stanton continues to help others, just as this sweet boy would do if he were alive today.