Amazing - That's what you are!
May 22, 2016
BENEFITING: DANNY DID FOUNDATION
ORGANIZER: DANNY DID FOUNDATION
EVENT DATE: May 18, 2016
I am fundraising for The Danny Did Foundation (DDF) in the 2016 Art Van Charity Challenge. Danny Did is a nonprofit organization that was created in honor of Danny Stanton. Danny was an awesome kid who gave a lot of love. He also had epilepsy, and died following a seizure in 2009.
As you know, we lost our daughter Jessica in 2014 when a seizure left her in a position where her airway was cut off. By the time she would have woken up, she was already gone. She was found over 5 hours later. Jess had had many Grand Mal seizures and her doctor(s) seemed to not be very concerned and never mentioned that death was a possibility. Since that time I have learned about the monitoring devices that are available that send an alert to a caregiver in the event of a seizure and I can only wonder if one of them would have let us get her help in time. If you are close to us, you also know that Jovo has been fighting epilepsy for over 5 years now. It is a daily battle and there is constant fear about what will happen if someone else is not there.
As an ambassador for DDF, I've been to area doctors offices, school nurses, etc. bring them information about DannyDid and how their patients can get help to obtain such a device. Often, when going through testing, medical costs go through the roof and the cost of such a device and the monthly fees that are involved are just not possible for a lot of families - DDF steps in and helps.
Please join us in supporting such a good cause in honor of Jess!
DANNY DID FOUNDATION wrote -
“Please Go and Enjoy Your Life . . . Danny Did.” Those were the last words of Danny Stanton's obituary, written by his dad, after Danny died suddenly following a seizure in his sleep. He was just three months shy of his fifth birthday. Danny had epilepsy, one of the oldest and most mysterious ailments. Rooted in the organ most responsible for our very humanity — the brain — it can cause seizures that come without warning, at any time, in many different forms. Yet Danny's family had never been informed about a critical risk for people who face seizures: Sudden Unexpected Death in Epilepsy (SUDEP).
WHY: To carry on Danny’s place in the world, the Danny Did Foundation (DDF) works towards its mission to prevent deaths caused by seizures. Every $1,000 raised for Danny Did in the 2016 Art Van Charity Challenge will fund seizure detection monitors for two families in need. The major impact of these devices is two-fold: parents gain the peace of mind of knowing that they will be alerted to a convulsive seizure and will have the chance to assist their loved one. At the same time, the person utilizing the device gains the added safety of a time-sensitive intervention during a seizure.
IMPACT: By reaching our goal to raise $30,000, we can provide at least 60 new families with a monitoring device. The DDF has funded monitoring devices for families spanning 48 states and 8 countries. As awareness has spread about the value of these resources, the number of requests for funding support to Danny Did has skyrocketed. Your donation will help us to meet this need! Please read about the life-changing impact of this program here.
Please donate today to protect the 1 in 26 Americans will who face epilepsy! Through this program, Danny Stanton continues to help others, just as this sweet boy would do if he were alive today.