Day #1, Mile #1 Team Mitchell (Robert & Boomer) Update
May 19, 2016
BENEFITING: DANNY DID FOUNDATION
ORGANIZER: DANNY DID FOUNDATION
EVENT DATE: May 18, 2016
Please help Robert and Team MITCHELL! By promoting this page, or making a donation to the DANNY DID Foundation (DDF), you quite possibly could SAVE A LIFE! The Mitchell family has teamed up to raise funds for the Danny Did Foundation in the in the 2016 Art Van Charity Challenge. Robert is 28 years old and #19 was Danny's favorite number. ROBERT'S GOAL is to walk a mile on 28 days during the 5 weeks of this fundraiser and he wants to get an individual to sponsor him for $19 for each of those days to hit his individual goal of $532 (28 days x $19)!
The overall DDF fundraising goal is $30,000 so that the foundation can provide monitoring devices that alert a caregiver in the event of a seizure. Early intervention when a seizure takes place is helpful. Typically, in cases of SUDEP (Sudden Unexpected Death in Epilepsy) the person is found in bed, or on the floor, and already dead. Monitoring devices allow others to know a seizure is occuring so the individual having the seizure can be attended to during and after the event. Some studies show this early intervention safety measure might reduce the risk of death. Cindy, Tom, and Robert, are Ambassadors for DDF in their home state of California. Robert (and therefore the Mitchell family) has dealt with seizures for over two decades.
Robert is 28 years old. He is diagnosed with an SCN1A Related Seizure Disorder and over the years has tried 17 antiepileptic drugs (in at least 25 different monotherapy and polytherapy settings). He has been under the continuous care of an excellent epileptologist and has always been medication compliant. Nevertheless, the harsh pharmaceuticals have failed to control his frequent seizures and several of those prescribed drugs came with horrendous side effects. The family has also tried a variety of non-pharmaceutical treatments—diets, chiropractic adjustments, acupuncture, cranial sacral therapy, massage, alternative supplements, and lifestyle management, none to date have been successful at stopping his seizures. Dealing with safety and risk prevention has been a big part of their lives since his first seizure when he was 2 years old. Robert is in a high-risk group for Sudden Unexpected Death in Epilepsy (SUDEP) and they use monitoring tools to alert them to Robert's seizures so they can provide immediate supervision and intervention. The Mitchell family acknowledges what they are dealing with daily and strive to help Robert to have the best quality of life possible. They continue to speak out, take action, and to stand up for Robert and those in our community who can’t do so themselves.
Your support makes a difference!
DANNY DID FOUNDATION wrote -
“Please Go and Enjoy Your Life . . . Danny Did.” Those were the last words of Danny Stanton's obituary, written by his dad, after Danny died suddenly following a seizure in his sleep. He was just three months shy of his fifth birthday. Danny had epilepsy, one of the oldest and most mysterious ailments. Rooted in the organ most responsible for our very humanity — the brain — it can cause seizures that come without warning, at any time, in many different forms. Yet Danny's family had never been informed about a critical risk for people who face seizures: Sudden Unexpected Death in Epilepsy (SUDEP).
WHY: To carry on Danny’s place in the world, the Danny Did Foundation (DDF) works towards its mission to prevent deaths caused by seizures. Every $1,000 raised for Danny Did in the 2016 Art Van Charity Challenge will fund seizure detection monitors for two families in need. The major impact of these devices is two-fold: parents gain the peace of mind of knowing that they will be alerted to a convulsive seizure and will have the chance to assist their loved one. At the same time, the person utilizing the device gains the added safety of a time-sensitive intervention during a seizure.
IMPACT: By reaching our goal to raise $30,000, we can provide at least 60 new families with a monitoring device. The DDF has funded monitoring devices for families spanning 48 states and 8 countries. As awareness has spread about the value of these resources, the number of requests for funding support to Danny Did has skyrocketed. Your donation will help us to meet this need! Please read about the life-changing impact of this program here.
Please donate today to protect the 1 in 26 Americans will who face epilepsy! Through this program, Danny Stanton continues to help others, just as this sweet boy would do if he were alive today.