BENEFITING: Kids With Food Allergies, Inc.
I am running in the Las Vegas Warrior Dash and I am fundraising for a wonderful nonprofit that helps raise money and awareness for research for FPIES patients. My baby niece Nika is two and has been diagnosed with FPIES. She is such a strong warrior every day, so I am racing in Warrior Dash in honor of her and her family for staying positive, strong willed and for continuing raising awareness and research funding for a cure. This is my first 5K race and I am very excited to be teaming up with The International Association for Food Protein Enterocolitis (IAFFPE) to sponsor my race.
Food Protein Induced Enterocolitis Syndrome (FPIES) is an allergic reaction in the gastrointestinal system. The most common triggers are milk and soy, but any food (even those thought to be hypoallergenic e.g. rice, oat) can cause an FPIES reaction. FPIES typically starts within the first year of life.
Children with FPIES and related issues usually cannot eat most foods, and in some cases cannot eat any food or they could die. My baby niece is suffering from this syndrome. She is just over two years old and cannot eat any food and is highly allergic to most every food product. I think about her and the other boys and girls with this syndrome and I realize how strong these kids have to be to go through the ins and outs of living with FPIES. Because it is so rare, FPIES really isn't being researched and no cure has been found.
I am raising money for all the kids who live with FPIES in hopes that the funds go directly to research for a cure and create more knowledge and awareness about this rare syndrome. Please help sponsor my run while I help the fight for a cure! Every little bit helps!
Here are a few links to some videos about FPIES:
http://youtu.be/cPgAgQ-4RS0 - This is Joshua's story, very detailed with great information for the unfamiliar.
http://youtu.be/_biETWiQVbA - A wonderful awareness video from the folks at AIFFPE, the organization I am fundraising for.
http://youtu.be/zUidvELzKP0 - A great clip from FPIES Foundation. These kids are Warriors!