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Lindsey Gregg's Fundraiser:

debra of America Half Marathon 2016

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Lindsey's Photo
Lindsey's Photo
Lindsey's Photo
Lindsey Gregg

THE STORY:

Dystrophic Epidermolysis Bullosa Research Association of America, Inc. wrote -

TEAM DEBRA has a limited number of charity entries in the 2016 NYC Half Marathon on Sunday, March 20, 2016 - and we want you to join our team! The NYC Half Marathon will take runners from around the globe on a 13.1-mile tour of New York City. 

For questions or to join TEAM DEBRA, email events@debra.org or call 212-868-1573 x105.

100% of donations benefit debra of America, the only U.S. nonprofit providing all-inclusive support to the EB community, through funding research for a cure, and providing free programs and services for those with Epidermolysis Bullosa (EB).

FACTS ABOUT EB
➤ 200. The number of children born with EB very year in the US, which equates to 1 in 20,000 births. Both genders and all racial and ethnic backgrounds are affected.
➤ $418,727. The total value of the boxes of supplies that debra of America shipped to EB families in 2014.
➤ 6. The number of surgeries a child with EB may need every year in order to swallow liquids.
➤ 22%. The percentage of the children born with EB in the United States in 2014, who passed away.
➤ $10,000. The average monthly cost for EB patients to acquire vital specialized bandages. Many insurance companies do not cover the full cost of these bandages.

WHAT IS EB?
Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder in which children do not produce a vital protein to allow their skin to adhere to itself. 1 out of every 20,000 births in the United States are affected by the disease. Children with EB are often referred to as "Butterfly Children" because their skin is extremely fragile and can blister or tear from any friction. Internal organs can also be seriously affected by the disease. EB is painful, often debilitating, and is in some cases lethal. There is no treatment or cure. Daily wound care, pain management, and protective bandaging are the only options available. Learn more at: debra.org/whatiseb

$2,080

MONEY RAISED
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  • Anonymous

    $100

  • Longworth

     

  • Darrell and Sandy Simpson

    $100

  • Mike and Jenny Binegar

    $20

  • Allie Horvath

    $25

  • Terri Horvath

    $50

  • The Murphy Family

    $50

  • Mike & Karen

     

  • Alex & Danielle Simpson

    $50

  • Chris Huelsman

    $25

  • Lisa

    $100

  • Anonymous

    $200

  • Jen Taulbee

     

  • Trent & Jill Weaver

    $25

  • Justin, Jen, Sam & Ann Richardson

    $30

  • Amy Macechko

    $25

  • Jenni Grzebin

    $25

  • Patrick Brane, Michelle & Cameron

    $25

  • Mark and Lori

    $50

  • Mike and Missy

    $50

  • Gary and Elaine

     

  • Brandon and Deana Harris

    $25

  • Cindi and Aaron Bixler

    $50

  • Molly & Jason Merz; Sara Evans; Larry Brock

    $70

  • Tracy Williams

    $50

  • Laura & Mike Strickland

    $50

  • Carmel & Bill

    $25

  • Gramps

    $50

  • The Moser Family

    $25

  • Brigette Murphy

    $50

  • Nanny & Poppy

    $50

  • Travis, Anna, Asher and Elise

    $100

  • David & Anita Murphy

    $25

  • Brandon & Emily Howard

    $50

  • The Weber Grandkids

    $100

  • Anonymous

    $50

  • Jeff & Ruthy Michael

    $50

  • Logan & Kaitlin Cottingim

    $50

  • Mike and Karen

    $50

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The Team: $7,680 TOTAL RAISED SO FAR

Fundraiser Title

Patrick Brane

Amount Raised

$4,430

 

295% Raised of $1,500 Goal

Fundraiser Title

Lindsey Gregg

Amount Raised

$2,080

Fundraiser Title

Sahar Arekat

Amount Raised

$1,000

Fundraiser Title

Ebe Becker

Amount Raised

$150

Fundraiser Title

Dystrophic Epidermolysis Bullosa Re...

Amount Raised

$20

 

0% Raised of $15,000 Goal

Fundraiser Title

Michael Mesker

Amount Raised

$0

Fundraiser Title

Kate Couden

Amount Raised

$0

Fundraiser Title

Michelle Brane

Amount Raised

$0

Donor Comments

Mike and Karen

Mike and Karen

DONATION: $50

Grandma & Grandpa 3 years ago

Logan & Kaitlin Cottingim

Logan & Kaitlin Cottingim

DONATION: $50

3 years ago

Jeff & Ruthy Michael

Jeff & Ruthy Michael

DONATION: $50

3 years ago

Anonymous

ANONYMOUS

DONATION: $50

3 years ago

The Weber Grandkids

The Weber Grandkids

DONATION: $100

Go Lindsey!!!! 3 years ago

Brandon & Emily Howard

Brandon & Emily Howard

DONATION: $50

3 years ago

David & Anita Murphy

David & Anita Murphy

DONATION: $25

3 years ago

Travis, Anna, Asher and Elise

Travis, Anna, Asher and Elise

DONATION: $100

3 years ago

Nanny & Poppy

Nanny & Poppy

DONATION: $50

3 years ago

Brigette Murphy

Brigette Murphy

DONATION: $50

3 years ago