Organized by: Deidra Jackson
Hello my name is Deidra Jackson, I was born April 25, 1966 and I am proud to say that I have truly lived a great life. I am a fun loving person who enjoys the company of my family and friends. I enjoy traveling, donating my time to those in need, learning new things, giving back to my community and just being outside near nature. ......I invite you to support my mission, which is to obtain care at the John Hopkins Hospital with your donations this can be made possible, no donation is to small as I appreciate it all with your love, care, concern and prayers.
I was asked, "Do I know how it all started?" I've thought about it numerous times and again I don't know THE BEGINNING, no family history, no symptoms as a child, was it when my first back surgery occurred and I was exposed to the bacteria and other harmful elements in the air? Was it just because? I will never know the answer to that question, What I do know I was diagnosed in 2009 with aggressive Primary Progressive Multiple Sclerosis.
Taking you back to 2005, I thought I was having hot flashes with wiping what I thought was sweat from my face, it was facial hair on my towel. For years I was told it was Alopecia when actually it was the T cells attacking my body immune system giving the distraction that the body cells are bad which didn't allow the body to reproduce body hair, this is a rare autoimmune disorder. The MS has caused deafness in my right ear, muscle tremors and weakness, facial spasms, numbness on my left side, short-term memory loss and balance issues. I wear a 75mg Fentanyl patch 24/7 due to constant pain and peripheral Neuropathy. I take Valium for spasticity and Percocet for breakthrough pain when the pain patch fails. There is currently no cure for MS; there are only experimental treatments. As part of a clinical trial, I receive a Tysabri infusion every 28 days to slow the progression of the disease. With long-term use, this treatment can cause PML, a rare and deadly brain cancer. This barely scratches the surface of how Progressive Aggressive MS affects me.
I hope I have been able to give you an insight as to how this disease has affected me and my life, I pray every day for a cure not only for myself but for the thousands upon thousands of other people also diagnosed with multiple sclerosis. Please join me in helping find a cure for MS and hopefully getting the care I need Johns Hopkins Hospital. Thank you for your time ! even a dollar can do wonders imagine what a buck can do!