BENEFITING: The Chadtough Foundation
EVENT DATE: Oct 08, 2017
An Introduction to The ChadTough Foundation
The ChadTough Foundation is committed to raising awareness and funding research to increase the survival rate of pediatric brain cancer, the leading cause of cancer related deaths among children.
The ChadTough Foundation was established in 2015 by Jason & Tammi Carr to be the lasting legacy for their beloved son, Chad. Chad was diagnosed with a deadly form of pediatric brain cancer, Diffuse Intrinsic Pontine Glioma (DIPG), in 2014. With the help of his parents and older brothers, CJ & Tommy, Chad courageously battled the disease for fourteen months. On November 23, 2015, Chad gained his angel wings and left his pain and suffering behind. He also left behind a devastated family and motivated community that desperately wanted to do everything possible to ensure future families would hear something other than, “Your child has DIPG and there is nothing we can do.”
Pediatric Brain Cancer By the Numbers
- Too many families suffer an immeasurable toll. Each year, 13,000+ parents hear the words “your child has cancer.” 1 out of 5 of these kids don’t survive and brain tumors are the leading cause. DIPG, in particular, has zero long-term survivors.
- There’s still no cure. While progress has been made in curing some childhood cancers, much of the treatment for pediatric brain tumors hasn’t changed in 40+ years.
- Not enough research is being done. Only 3 percent of federal funding for cancer research goes toward solving pediatric cancers. And, pediatric brain cancers receive just a sliver of these limited funds because they’re considered “rare” by medical statistics.
- Pediatric brain tumor research can open new avenues of treatment for other childhood and adult cancers. What we uncover about rare cancers like DIPG will shed light on the genetic defects and cellular behavior of all cancers.
Breakthroughs Are On The Horizon
Due to advancements in neurosurgical techniques and acquisition of tumor tissue for research, and through fund- ing from foundations like ours, there are numerous clinical trials taking place at major medical centers across the US and in other countries that are finally showing promise.