Alix Diaconis wrote -
A brother Ari (POTS warrior) and sister Alix bicycling from Florida to California for POTS, an often debilitating neurological disorder resulting in, among other things, reduced blood flow to the brain, rapid heart rate and chronic fatigue. POTS will eventually become a household name, and this bicycle tour will accelerate that process. Please watch our video to learn all about this exciting project, and please visit www.ThePedalForPOTS.com to learn even more!
Goal #1: Use our cross-country bicycle tour to create national media attention for POTS. Specifically, our goal is participate in 10 news articles, 3 radio interviews and 3 television spotlights.
Goal #2: Raise funds to cover the cost of the bicycle tour, including campground fees, motels, food expenses and other contingency costs. [Done!]
Goal #3: Raise $50,000 for the Dysautonomia International POTS Research Fund.
Postural Orthostatic Tachycardia Syndrome (POTS) is a disorder wherein the “autonomic nervous system” fails to properly circulate blood. Approximately 25% of POTS patients are disabled and unable to work. Symptoms can include fainting, near-fainting, migraines, extreme fatigue, nausea, rapid heart rate, shortness of breath, cognitive impairment, visual impairment, digestion issues, reduced blood flow to the brain and dramatic variations in blood pressure. To learn more, please visit www.ThePedalForPOTS.com.
The Pedal For POTS is proud to be raising funds for Dysautonomia International. Dysautonomia International is a 501(c)(3) non-profit dedicated to identifying the causes and cures for POTS and related disorders and to enhancing the quality-of-life of people currently living with these illnesses. For many POTS patients, Dysautonomia International is a primary source of information on all things POTS, including doctor referrals, the latest POTS research and important fundraising events. Dysautonomia International has funded numerous POTS research projects and is leading the charge in the search for a cure. Please visit www.DysautonomiaInternational.org for more information.