BENEFITING: Cure JM Foundation
Our family is gathering en masse January 15-17 2016 to fight Juvenile Myositis! We are volunteering at the conference (Claudon family heading the kids room complete with authentic Star war characters, all Jacque’s sisters on board), and have family runners and volunteers at the St. Pete Beach Classic Half Marathon as part of Cure JM Foundation’s National Conference and Fundraising Event in St. Pete Beach, FL. We are running/volunteering to help find a cure for a rarer than rare disease that afflicts one of our own.
Our son Eric was diagnosed with Juvenile Myositis at age 11 in 1998 and through immediate and appropriate treatment has achieved remission. Our wish is that awareness is increased such that all children with this rare disease are diagnosed at onset and treated appropriately, that all children may reach remission like Eric, and ultimately that a cure may be found.
Juvenile Myositis (or JM) is a disease that causes a child's own immune system to attack healthy tissue and cells, which can cause pain, weakness, inability to walk, disfigurement, organ failure and even lead to death. Juvenile Myositis can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. And there is no cure….YET!
But together we can make a difference! Our goal is to raise an astonishing amount of money for life-changing research.
On January 31st, researchers and physicians from across North America will be submitting NEW research proposals to Cure JM. Your gift now will help make sure that Cure JM is able to fund these new research proposals. Help us hit our family’s goal to raise awareness and enough funds so that no research is left on the table in January.
With deep gratitude,
Jacque, Bruce, Clark, Eric DenUyl, Jacque’s sisters Carol Claudon, Nancy Raasch, Nina Schiegg and families, and any other family member and friend we can possibly beg to join us in the cause. Help Team DenUyl-Claudon Cure JM!!!