Dercums Disease, Trip to raise awareness
Organized by: Rita Alaniz
I want to make a trip around the states to speak with hospitals, clinics, and doctors about this rare disease to help more like myself. I know many people that struggle with this disease have so many issues with doctors even knowing about the disease. I wished many times someone would have spoke with these places. Dercums Disease is a rare adipose disorder and is rated the 2nd Most painful disease in the world and rated the 3rd rarest. I want to help others that are going through what I have and to bring light about our daily hardships.