BENEFITING: Transverse Myelitis Association
EVENT DATE: Oct 05, 2014
2014 has spawned the year of challenges and with that I'm doing my own
DQ Kicks for TMA Challenge!
For every 5 dollars donated, I'll record/post a video to honor your donations...10 dollars, 2 kicks and so on....
The intention for the kicks is to display the work/challenge I go through living with residuals of the disease and how significant weaknesses comparing left and right sides of the body are during the recovery period after onset of Transverse Myelitis symptoms. My right side is the weaker side, which is why I'm throwing right kicks exclusively.
Here's a link to the videos/donations honored so far!
My TM Story.
January 1998 was when my initial bout with Transverse Myelitis surfaced. I was in 8th grade and after arriving home from school I started experiencing increasing chest pain. I curled up from the pain and needed to be carried to the car and rushed to the hospital. Luckily both my brothers were home and able to take me otherwise I don't know if I would have made it. The ER doctors and nurses had treated the chest pains but I had very limited sensation and movement from my chest line down to my feet. I was released from the ER because the chest pains have subsided but my upper body was extremely tender and painful. Also my mid to lower body had very little movement/sensation. The next day I was taken to another hospital to see a neurologist and for further testing. After a few days of testing including a spinal tap and 2 MRIs they concluded that it was Transverse Myelitis with the spinal area affected being around level T-6 or 7. I was paralyzed for a couple of weeks before initially gaining movement back on the left side first then a short time after the right side began movement again. I feel I'm in the more lucky percentage of individuals with Transverse Myelitis residuals that are more manageable in an independent manner.
It's been a little over a decade since I've used my wheelchair or walking cane and am continuing to show positive progress in handling any physical challenges due to my altered nerves. More importantly I've been able to accept and appreciate the emotional residuals that occur after a condition like this. I've had and still have the most incredible support system and I would like to do something to honor the work and care that others have put into me.
Here is a link to my youtube page where I have been posting some of my progress with my therapy the past year or so:
Overall though I just want to open myself to more experiences with positively strong minded individuals who have had a similar experience with the kind of struggle that these conditions spawn.
BENEFITING: The Transverse Myelitis Association
The goal of the Illinois Walk-Run-N-Roll Campaign is to increase awareness and raise funds for research and programs for individuals suffering from Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica (NMO), Optic Neuritis (ON), Transverse Myelitis (TM) and Recurrent Transverse Myelitis, and their caregivers.
The second annual Illinois Walk-Run-N-Roll for the Transverse Myelitis Association (TMA) will begin with Registration from 10 to 11 a.m., followed by the Walk-Run-N-Roll and a Post-Walk Celebration. It will be held at beautiful McCollum Park, 6801 South Main Street, Downers Grove, IL. Proceeds will benefit TMA's research and service programs for people with TM, NMO, ON and ADEM.
Last year's event was truly a full circle day. People who have suffered in various ways, isolated by "rare" were connected by these same rare diagnosis as a means of support and instant friendships. We hope you will join us again this year to continue to show support for those affected by these life altering disorders and create hope and awareness.
Everyone is invited to register, donate and spread the word. Teams are now forming. For information, contact Liz Beutel at firstname.lastname@example.org or 630-922-5833
Read more about last year's Walk-Run-N-Roll here.