Devon from Heaven, NOAH Fund
Organized by: Stephany Woodard
Hello, my name is Stephany, and I am the blessed mother of Devon, whom was diagnosed with OCA type II at 8 months old. This is a genetic disorder that is found in 1 out of 20,000 people. Due to its rarity there is not a lot of information easily accessible to us and others, we are raising money to attend the National Organization of Albinism and Hypopigmentation's national conference held in july this year so that we can connect with researchers, medical professionals, and others with this condition so that we can further educate ourselves about the challenges Devon will face throughout his lifetime, as well as so we may become advocates for this disorder and educate our community, family, friends, and Devons schoolmates. We truly appreciate any donation you can extend to our family so that we make take this journey and have a better understanding of what we can do for Devon and others! Thank you for your consideration and God Bless!