BENEFITING: Joey Fabus Childhood Cancer Foundation Inc
Diffuse Intrinsic Pontine Gliomas tumors are located in the brainstem, at the base of the brain. They are usually diagnosed in children aged 5 to 10. They are difficult to treat because the tumor cells grow in between and around normal cells. It is impossible to remove a tumor in this area because it interferes with the functioning of this critical area of the brain.
Because they are difficult to treat, the outcome for brainstem gliomas is poor. After diagnosis, the survival time is on average 9 to 12 months. To improve the outcome, doctors have tried giving higher amounts of radiation, or using chemotherapy medicines to kill the tumor cells. Research is underway to achieve better results. When the tumor recurs, the focus of treatment is on managing symptoms to make sure the child is as comfortable as possible.
The purpose of the Joey Fabus Childhood Cancer Foundation is to bring more awareness about DIPG to the world and to run several fundraisers throughout the year. Those funds will then be donated to successful DIPG research facilities around the world in the hopes that one day they will find a better treatment, and possibly a cure, for this awful disease. The Foundation will also support families affected by this disease. Please click the "Donate" button to help.
With your help we can do this.