BENEFITING: Epilepsy Foundation of Greater Los Angeles
EVENT: ASICS LA Marathon 2013
EVENT DATE: Mar 17, 2013
Our daughter Britney came into this world healthy, happy, and beautiful. Her life quickly changed at age four when she started experiencing hundreds of seizures a day. We were told there was a possibility she would grow out of her seizures, before the age of nine. As parents we found ourselves wishing the years away for Britney to turn nine because we had the hope she would no longer suffer these debilitating seizures, but she has surpassed age nine is currently twenty one years old and still suffers with generalized and petite mal seizures a couple times a week. It is very unfortunate that approximately 30% of patients diagnosed with epilepsy are resistant to medications and are diagnosed as intractable epilepsy and Britney falls in this category. Through the years this has forced our family to make some pretty tough decisions. Britney has had a Vagus Nerve Stimulator implanted; at age 15, Brain Surgery to remove a partial of her left temporal lobe; at age 16, Deep Electrode Implantation Surgery; at age 19 where we were informed she was no longer a surgery candidate and has been on every medication on the market.
We were also blessed with another beautiful daughter named Kayla whom is eighteen. Kayla struggles daily with her own disease, Type-One Diabetes, but through her own daily struggles she is always the first to be there for her sister and thinking of ways to make a difference in Britney's life. They are both a dream come true for us and are the most selfless, considerate, beautiful, and loving daughters any parent could ever dream of. We pray constantly that one day they will both be freed from their disease.
We as a family are constantly looking for ways to improve the quality of Britney’s life. We have all embraced the fact that she is epileptic and will always remain hopeful for a cure. Britney has also been gifted with many wonderful qualities and talents. It is up to us to take those gifts, cultivate and use them. Britney is a great speaker and support to others that suffer with epilepsy. Through the Epilepsy Foundation of Greater Los Angeles we had the privledge of traveling to Washington D.C. and speaking to Congress about epilepsy in hopes of increased funding and awareness.
Through adversity we have been blessed with meeting some truly incredible families. Our families mission is to always remain hopeful and we're committed to raise funds to help fund research for a cure, raising awareness to epilepsy and SUDEP (Sudden unexplained death in epilepsy), and paying it forward to other families in need.
We have always been told that experiencing one seizure is like running a marathon. So, dad, mom, sister, cousin~Brian and our dear friends Dina and Abby Ramsey have become a team and will run the 2013 Los Angeles Marathon to raise funds to help support The Epilepsy Foundation of Greater Los Angeles as they have been a huge support in our lives. Please consider donating to our cause any amount is appreciated.
Thank you in advance for your support,
Tom~dad, Christie~mom, Kayla~sister, Brian~cousin, Dina and Abby Ramsey~our dear friends