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EB Research Partnership's Fundraiser:

JGSF Disney Marathon Weekend

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THE STORY:

 

About the Jackson Gabriel Silver Foundation:

The Jackson Gabriel Silver Foundation is a nonprofit organization founded by Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. JGSF funds scientific research with the goal of treating and curing this devastating disease. To date, JGSF and affiliated funds have directly raised over $850,000 and have been instrumental in securing over $28 million for EB research. JGSF has given grants to support the promising therapies at leading institutions including Stanford University, the University of Minnesota, the University of Southern California and others. Please visit www.jgsf.org to learn more.

About Epidermolysis Bullosa (EB):

EB is a debilitating and devastating genetic disorder that affects a child from birth. EB is extremely rare - a child has 1 in 50,000 chance of being born with EB - and EB is not specific to any ethnicity or gender.

EB is technically defined as a group of diseases characterized by blister formation after minor trauma to the skin. Practically speaking, a child who suffers from EB lacks a critical protein that binds his or her layers of skin together. This protein acts as the “velcro” that attaches one layer of his or her skin to the other. Without this “velcro,” when this child moves, his or her skin slides apart, blisters and shears off leading to severe pain, disfigurement, and in too many cases, a premature death. A child with a severe form of EB can have a 60% cumulative risk of dying by age 15 and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life. 

DONATE

To This Fundraiser

$39,097

MONEY RAISED
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  • Linda Morris

    $10

  • Linda Leva Schrank

    $100

  • Rachael Yellen

    $50

  • Susan Varvara

    $25

  • Pat Bradley

    $25

  • Pat Bradley

    $25

  • Pat Bradley

    $25

  • The Cornell Family

    $50

  • Robbie Twible

    $50

  • Mira Selm

    $25

  • patrick gibbons

    $25

  • Ceil Jacob

    $25

  • The Shortens

     

  • STEVEN, ALLISON& KENNY THORSEN

    $420

  • Tamala Campbell

    $20

  • Yvette Chandler

    $25

  • Rachel Feuerstein

    $36

  • Anne Martin

    $25

  • Anonymous

    $150

  • Juliet, Dan, & Jack

     

  • Doris Ceiro

    $10

  • Amy and Nico Pinel

     

  • Sherri McGuire

    $25

  • Anonymous

    $25

  • Nita Baum

    $25

  • G Ma

    $100

  • Alvaro

    $50

  • Lisa & Carmine Timmoneri

    $50

  • Wanda Aponte

    $25

  • Eric & Leslie Knutsen

    $25

  • Eric & Leslie Knutsen

    $25

  • BC Girl

    $75

  • BC Girl

    $75

  • BC Girl

    $75

  • BC Girl

    $75

  • Brian Mansfield

    $21

  • Leslie Nathan

    $25

  • Michaela and Jackson

    $300

  • The Ambio Family

    $25

  • Frank Alvarado

    $25

  • ellen segal

    $100

  • Aunt Camille & Uncle Carmine

    $30

  • Lisa, Dave, Emily and Jake

    $50

  • The Wepy Family

    $25

  • Irene Hernandez

    $100

  • Lynn & Jerry

    $25

  • Mystery B

    $250

  • Nicole Collins

    $100

  • The Eropkins

    $100

  • Michele Moyle

    $100

  • Marcela Diaz-Granados

    $40

  • Mandy Giovinazzo-Minde

    $40

  • Wade and Marie Layton

    $75

  • Nicole Giovinazzo

    $25

  • Your Favorite IT GUY - LIVESTRONG !

    $25

  • Jen & Lou Tobacco

    $25

  • Judy Scheinberg

    $50

  • jennifer & lou tobacco

    $25

  • Vucko Family

    $40

  • Julia murdocca

    $100

  • Marlo Verdesca

     

  • Jen, Brayden , Parker & Gavin

    $20

  • Donna Mae

    $65

  • Tammie Chambers Lambeth

    $40

  • Kutner Family

    $50

  • Kristin, Damian, Liam, Riley, & Jack Pieper

     

  • Phil Baena

    $40

  • Friend of Faye

    $50

  • The Thibault Family

    $50

  • Luisa Briceno Gonzalez

    $30

  • The Fitzpatrick Family

    $40

  • Janet Lennox

    $25

  • Lori Potestivo

    $20

  • Daria Wesnofske

    $50

  • Svetlana

    $100

  • abby

    $200

  • The Haratunian Family

    $100

  • The Verdi Family

    $200

  • charlie and Valerie Caliendo

    $100

  • Amit Kapadia

    $10

  • Cyn & Billy

    $150

  • Kelly & David

    $200

  • Regina family

    $50

  • Nonie Susser

    $50

  • The Murtagh Family

    $200

  • Santos family

    $100

  • The Kennedy Family

    $100

  • Vanessa Lampe

    $20

  • Felice Amera

    $25

  • Thomas and Theresa Bowes

    $250

  • Christine - Treasure Island

    $15

  • Salman Mirisha

    $20

  • Rich & Donna Grado

    $50

  • Monika Kurschatke and Chris Griffin

    $50

  • DENT

    $200

  • Carmine Palummo

    $20

  • Rita O'Shea

    $25

  • Midge & Bob Ecker

    $25

  • Patti Anne and Tim Reilly

    $200

  • The Hilliker Family

    $257

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Fundraise for this Campaign

The Team: $39,097 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

marni larkin

Amount Raised

$3,500

Fundraiser Title

Ronnie Grossmann

Amount Raised

$2,900

Fundraiser Title

Jenni Ferro

Amount Raised

$2,552

 

102% Raised of $2,500 Goal

Fundraiser Title

Edward Grossmann

Amount Raised

$2,500

Fundraiser Title

Liz Morano

Amount Raised

$2,430

Fundraiser Title

Faye Dilgen

Amount Raised

$1,850

Fundraiser Title

Karen Thorsen

Amount Raised

$1,640

 

164% Raised of $1,000 Goal

Fundraiser Title

Karen Williams

Amount Raised

$1,540

Donor Comments

The Hilliker Family

The Hilliker Family

DONATION: $257

2 years ago

Patti Anne and Tim Reilly

Patti Anne and Tim Reilly

DONATION: $200

5 years ago

Rita O'Shea

Rita O'Shea

DONATION: $25

5 years ago

Midge & Bob Ecker

Midge & Bob Ecker

DONATION: $25

5 years ago

Carmine Palummo

Carmine Palummo

DONATION: $20

5 years ago

DENT

DENT

DONATION: $200

"the house of cards may topple the confection may melt the harmony may be dragged away by some dangerous undertow" Life is precarious and precious 5 years ago

Monika Kurschatke and Chris Griffin

Monika Kurschatke and Chris Griffin

DONATION: $50

go Marni, go Faye, GO JOHN!! 5 years ago

Christine - Treasure Island

Christine - Treasure Island

DONATION: $15

5 years ago

Salman Mirisha

Salman Mirisha

DONATION: $20

5 years ago

Rich & Donna Grado

Rich & Donna Grado

DONATION: $50

5 years ago