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Abbie Levine's Fundraiser:

JGSF Disney Marathon Weekend

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Abbie Levine

THE STORY:

I'm running the Disney 5K to help raise money to find a cure for EB for Jackson Gabriel Silver, John Hudson Dilgen and all the other EB children out there. We MUST find a cure and I know if we work hard enough we will!!

About the Jackson Gabriel Silver Foundation:

The Jackson Gabriel Silver Foundation is a nonprofit organization founded by Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. JGSF funds scientific research with the goal of treating and curing this devastating disease. To date, JGSF and affiliated funds have directly raised over $850,000 and have been instrumental in securing over $28 million for EB research. JGSF has given grants to support the promising therapies at leading institutions including Stanford University, the University of Minnesota, the University of Southern California and others. Please visit www.jgsf.org to learn more.

About Epidermolysis Bullosa (EB):

EB is a debilitating and devastating genetic disorder that affects a child from birth. EB is extremely rare - a child has 1 in 50,000 chance of being born with EB - and EB is not specific to any ethnicity or gender.

EB is technically defined as a group of diseases characterized by blister formation after minor trauma to the skin. Practically speaking, a child who suffers from EB lacks a critical protein that binds his or her layers of skin together. This protein acts as the “velcro” that attaches one layer of his or her skin to the other. Without this “velcro,” when this child moves, his or her skin slides apart, blisters and shears off leading to severe pain, disfigurement, and in too many cases, a premature death. A child with a severe form of EB can have a 60% cumulative risk of dying by age 15 and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life. 

DONATE

To This Fundraiser

$875

MONEY RAISED
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  • Mike Triunfo

    $200

  • bobbie baron& heidi block

    $100

  • Heather Zaretsky

    $100

  • Margie and Louis Levine

    $50

  • Julianne Recine

    $50

  • Arthur Toretzky

    $25

  • Marielena Recine

    $25

  • Jodi Silverman

    $25

  • Lori Lieberman

    $50

  • Abigail and Vince Maddi

    $250

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175% Raised of $500 Goal

Fundraise for this Campaign

The Team: $39,097 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

marni larkin

Amount Raised

$3,500

Fundraiser Title

Ronnie Grossmann

Amount Raised

$2,900

Fundraiser Title

Jenni Ferro

Amount Raised

$2,552

 

102% Raised of $2,500 Goal

Fundraiser Title

Edward Grossmann

Amount Raised

$2,500

Fundraiser Title

Liz Morano

Amount Raised

$2,430

Fundraiser Title

Faye Dilgen

Amount Raised

$1,850

Fundraiser Title

Karen Thorsen

Amount Raised

$1,640

 

164% Raised of $1,000 Goal

Fundraiser Title

Karen Williams

Amount Raised

$1,540

Donor Comments

Abigail and Vince Maddi

Abigail and Vince Maddi

DONATION: $250

6 years ago

Lori Lieberman

Lori Lieberman

DONATION: $50

6 years ago

Jodi Silverman

Jodi Silverman

DONATION: $25

6 years ago

Marielena Recine

Marielena Recine

DONATION: $25

6 years ago

Arthur Toretzky

Arthur Toretzky

DONATION: $25

6 years ago

Julianne Recine

Julianne Recine

DONATION: $50

6 years ago

Margie and Louis Levine

Margie and Louis Levine

DONATION: $50

6 years ago

Heather Zaretsky

Heather Zaretsky

DONATION: $100

6 years ago

bobbie baron& heidi block

bobbie baron& heidi block

DONATION: $100

6 years ago

Mike Triunfo

Mike Triunfo

DONATION: $200

6 years ago