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Leslie Rader's Fundraiser:

JGSF Disney Marathon Weekend

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Leslie Rader via Crowdrise
July 16, 2012

I am running in this marathon in the memory of Lauren and to support all those touched by Epidermolysis Bullosa.  See more
Leslie Rader

THE STORY:

To all my family, friends, friends of friends, supporters of EB and those who want to help.  I am running in this marathon in the memory of Lauren and to support all those touched by Epidermolysis Bullosa.  Please support me as I run my first marathon and help a great EB foundation at the same time!

 

About the Jackson Gabriel Silver Foundation:

The Jackson Gabriel Silver Foundation is a nonprofit organization founded by Alex and Jamie Silver, whose son Jackson was born with Epidermolysis Bullosa ("EB"), a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. JGSF funds scientific research with the goal of treating and curing this devastating disease. To date, JGSF and affiliated funds have directly raised over $850,000 and have been instrumental in securing over $28 million for EB research. JGSF has given grants to support the promising therapies at leading institutions including Stanford University, the University of Minnesota, the University of Southern California and others. Please visit www.jgsf.org to learn more.

About Epidermolysis Bullosa (EB):

EB is a debilitating and devastating genetic disorder that affects a child from birth. EB is extremely rare - a child has 1 in 50,000 chance of being born with EB - and EB is not specific to any ethnicity or gender.

EB is technically defined as a group of diseases characterized by blister formation after minor trauma to the skin. Practically speaking, a child who suffers from EB lacks a critical protein that binds his or her layers of skin together. This protein acts as the “velcro” that attaches one layer of his or her skin to the other. Without this “velcro,” when this child moves, his or her skin slides apart, blisters and shears off leading to severe pain, disfigurement, and in too many cases, a premature death. A child with a severe form of EB can have a 60% cumulative risk of dying by age 15 and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life. 

DONATE

To This Fundraiser

$1,050

MONEY RAISED
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  • Leslie "I CAN DO IT" Rader

    $50

  • Mimi & Papaw

    $50

  • Stacy Bettisworth Phillips

    $50

  • Lael "I Know You Can" Snyder

    $50

  • JFD Advertising & Public Relations

    $100

  • Mark & Sheri Pennacchio

    $50

  • Paul Tolusso

    $30

  • Stranger on plane

    $5

  • Tiff

    $25

  • Al and Joy

    $100

  • Stabile Family

    $50

  • Dan & Jo

    $50

  • Anonymous

     

  • Robbie Twible

    $50

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105% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $39,097 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

marni larkin

Amount Raised

$3,500

Fundraiser Title

Ronnie Grossmann

Amount Raised

$2,900

Fundraiser Title

Jenni Ferro

Amount Raised

$2,552

 

102% Raised of $2,500 Goal

Fundraiser Title

Edward Grossmann

Amount Raised

$2,500

Fundraiser Title

Liz Morano

Amount Raised

$2,430

Fundraiser Title

Faye Dilgen

Amount Raised

$1,850

Fundraiser Title

Karen Thorsen

Amount Raised

$1,640

 

164% Raised of $1,000 Goal

Fundraiser Title

Karen Williams

Amount Raised

$1,540

Donor Comments

Robbie Twible

Robbie Twible

DONATION: $50

We are so proud of you! Thank you for all you have done and continue to do for those affected by this disease. Lauren will be with you every step of the way! Good luck 6 years ago

Anonymous

ANONYMOUS

6 years ago

Dan & Jo

Dan & Jo

DONATION: $50

6 years ago

Stabile Family

Stabile Family

DONATION: $50

6 years ago

Al and Joy

Al and Joy

DONATION: $100

6 years ago

Tiff

Tiff

DONATION: $25

In memory of Lauren. 6 years ago

Paul Tolusso

Paul Tolusso

DONATION: $30

6 years ago

Stranger on plane

Stranger on plane

DONATION: $5

6 years ago

Mark & Sheri Pennacchio

Mark & Sheri Pennacchio

DONATION: $50

6 years ago

JFD Advertising & Public Relations

JFD Advertising & Public Relations

DONATION: $100

6 years ago