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DO AWAY WITH SMA

DO AWAY WITH SMA
CROWDRISE : May 04, 2015
Tax ID: 47-2101370
BASED: New York, NY, United States

CHARITY WEBSITE: www.doawaywithsma.org

Running 500 miles TO HELP CURE SMA

Joseph Kolinsky is embarking on a Marathon a Day adventure this August during SMA Awareness month. The goal is to run a marathon a day from The Walt Disney Family Museum in The Presidio in San Francisco, CA. to the Esplanade in Disneyland Resort Anaheim, CA. Please help fund this adventure by donating to this crowdrise effort.

Do Away with SMA is dedicated to the creation, development and execution of unique projects and programs for the purpose of increasing the public’s awareness of Spinal Muscular Atrophy (“SMA”), and raising donations for medical research and assistance for families affected by SMA.  

Building community awareness is at the heart of DAWS.  Members of the running community have come together with the purpose to support our teammate and Captain (Joseph R. Kolinsky). His family was affected by SMA, and the team wishes to raise money and awareness .  CureSMA describes SMA as:

“Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. It is a relatively common "rare disorder": approximately 1 in 6000 babies born is affected, and about 1 in 40 people are genetic carriers”.

Tax ID: 47-2101370 • www.doawaywithsma.org

Fundraisers

2017 Marine Corps Marathon

2017 Marine Corps Marathon

Amount Raised:

$2,805

2017 Grind For SMA

2017 Grind For SMA

Amount Raised:

$95

 

1% Raised of $10,000 Goal

500 Miles for SMA

500 Miles for SMA

Amount Raised:

$8,980

 

90% Raised of $10,000 Goal