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DOWN SYNDROME ADVOCACY GROUP's Fundraiser:

Down Syndrome Center for Excellence

DOWN SYNDROME ADVOCACY GROUP's Photo

THE STORY:

Every year families in this and surrounding communities drive 2-3 hours to visit a geneticist specializing in Down syndrome. We would like to partner with hospitals in this area to create a Down Syndrome Center for Excellence much like the one in St. Louis, Missouri at St. Louis Children's Hospital. For more information on the St. Louis center, please visit https://www.stlouischildrens.org/our-services/down-syndrome-center

Center Highlights

The Center should assist each child with Down syndrome to reach his or her full potential in all aspects of life. To achieve that goal, proper health care is instrumental in the development of the child. That’s why the convenience of a comprehensive, multi-disciplinary center focused on Down syndrome helps to ensure that each child’s medical, developmental and psychological needs are met. The Center will make it simpler for parents by:

  1. Arranging appointments at one location with the specialists your child needs to see.
  2. Arranging your appointments in the most efficient manner so you and your child gain the maximum benefit
  3. Using a collaborative approach because our team of experienced caregivers is in one location.

The Center would offer specialty care in the following areas:

  • Genetics
  • Genetic Counseling
  • Cardiology
  • Newborn Medicine
  • Otolaryngology (ENT)
  • Ophthalmology Speech & Language Therapy
  • Physical Therapy
  • Occupational Therapy
  • Audiology
  • Registered Dietitian
  • Social Work

The Team: $0 TOTAL RAISED SO FAR

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