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DRAVET SYNDROME FOUNDATION INC's Fundraiser:

DSF - Macy's Shop for a Cause

DRAVET SYNDROME FOUNDATION INC's Photo
DRAVET SYNDROME FOUNDATION INC's Photo
DRAVET SYNDROME FOUNDATION INC's Photo
DRAVET SYNDROME FOUNDATION INC's Photo
DRAVET SYNDROME FOUNDATION INC's Photo
DRAVET SYNDROME FOUNDATION INC's Photo
 

Join DSF in the Macy's Charity Challenge, starting July 11th!
July 05, 2017

Join our team as a fundraiser and let your friends and family know about the Macy's Charity Challenge from July 11-August 9!  As a thank you  See more

THE STORY:

Dravet syndrome is a rare and intractable form of epilepsy that begins in epilepsy, with an estimated incidence rate of 1:16,000-21,000. Patients suffer from frequent and multiple seizure types. Seizures are frequently prolonged and require emergency intervention. Dravet syndrome impacts every moment of every day for patients who suffer with it. In addition to seizures, there are many associated health issues such as difficulty with gait, sleep, digestion, as well as behavioral and developmental delays. 


Current treatment options are limited, and the constant care required for someone suffering from Dravet syndrome can severely impact the patient’s and the family’s quality of life. Patients with Dravet syndrome face a 15-20% mortality rate due to SUDEP (Sudden Unexpected Death in Epilepsy), prolonged seizures, seizure-related accidents such as drowning, and infections.  Research for a cure offers patients and families hope for a better quality of life for their loved ones. 


The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.  

DSF has awarded over $3.3M in research grant awards and over $130K in patient assistance grants. This has happened only because of our generous supporters and community. Please help us continue the important work we do!

$400

MONEY RAISED
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  • Tony Gleason

    $100

  • Gigi

    $25

  • John T

     

  • Grandpop and Grandmom

    $25

  • Deborah Curylo

    $25

  • Sonja Perry

    $50

  • Rachel Garate

    $50

  • Doug, Laura, and Mack

    $50

  • The Paige Coelho Family

     

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8% Raised of $5,000 Goal

The Team: $400 TOTAL RAISED SO FAR

Fundraiser Title

Carla Miller

Amount Raised

$200

Fundraiser Title

DRAVET SYNDROME FOUNDATION INC

Amount Raised

$125

 

3% Raised of $5,000 Goal

Fundraiser Title

Mary Anne Meskis

Amount Raised

$50

Fundraiser Title

misty Ried

Amount Raised

$25

Fundraiser Title

Jamie Cohen

Amount Raised

$0

Fundraiser Title

Nichelle Dominguez

Amount Raised

$0

Fundraiser Title

Timothy Wood

Amount Raised

$0

Fundraiser Title

Kate Hintz

Amount Raised

$0

Donor Comments

The Paige Coelho Family

The Paige Coelho Family

9 months ago

Doug, Laura, and Mack

Doug, Laura, and Mack

DONATION: $50

9 months ago

Rachel Garate

Rachel Garate

DONATION: $50

Happy Birthday Carla - you are a amazing Grandmother! 9 months ago

Sonja Perry

Sonja Perry

DONATION: $50

In honor of Great Nephew Henry 9 months ago

Deborah Curylo

Deborah Curylo

DONATION: $25

In loving tribute to grandson Henry 9 months ago

Grandpop and Grandmom

Grandpop and Grandmom

DONATION: $25

In Honor of our beloved grandson, Henry, who delights us with his affection, energy, determination, sweetness, and zest for life! 9 months ago

John T

John T

Mr. Elliot 9 months ago

Gigi

Gigi

DONATION: $25

For all of the Dravet children! 9 months ago

Tony Gleason

Tony Gleason

DONATION: $100

9 months ago