Please consider making a donation of any amount to the Dravet Syndrome Foundation. Our 3-year old grandson was diagnosed with this devastating disease at 18 months old. Because it is rare, not a lot of money goes towards its research. Thank you!!
July 13, 2017
BENEFITING: DRAVET SYNDROME FOUNDATION INC
ORGANIZER: DRAVET SYNDROME FOUNDATION INC
DRAVET SYNDROME FOUNDATION INC wrote -
Dravet syndrome is a rare and intractable form of epilepsy that begins in epilepsy, with an estimated incidence rate of 1:16,000-21,000. Patients suffer from frequent and multiple seizure types. Seizures are frequently prolonged and require emergency intervention. Dravet syndrome impacts every moment of every day for patients who suffer with it. In addition to seizures, there are many associated health issues such as difficulty with gait, sleep, digestion, as well as behavioral and developmental delays.
Current treatment options are limited, and the constant care required for someone suffering from Dravet syndrome can severely impact the patient’s and the family’s quality of life. Patients with Dravet syndrome face a 15-20% mortality rate due to SUDEP (Sudden Unexpected Death in Epilepsy), prolonged seizures, seizure-related accidents such as drowning, and infections. Research for a cure offers patients and families hope for a better quality of life for their loved ones.
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.
DSF has awarded over $3.3M in research grant awards and over $130K in patient assistance grants. This has happened only because of our generous supporters and community. Please help us continue the important work we do!