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Tara Penrod's Fundraiser:

DSF - Macy's Shop for a Cause

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Tara Penrod

THE STORY:

DRAVET SYNDROME FOUNDATION INC wrote -

Dravet syndrome is a rare and intractable form of epilepsy that begins in epilepsy, with an estimated incidence rate of 1:16,000-21,000. Patients suffer from frequent and multiple seizure types. Seizures are frequently prolonged and require emergency intervention. Dravet syndrome impacts every moment of every day for patients who suffer with it. In addition to seizures, there are many associated health issues such as difficulty with gait, sleep, digestion, as well as behavioral and developmental delays. 


Current treatment options are limited, and the constant care required for someone suffering from Dravet syndrome can severely impact the patient’s and the family’s quality of life. Patients with Dravet syndrome face a 15-20% mortality rate due to SUDEP (Sudden Unexpected Death in Epilepsy), prolonged seizures, seizure-related accidents such as drowning, and infections.  Research for a cure offers patients and families hope for a better quality of life for their loved ones. 


The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.  

DSF has awarded over $3.3M in research grant awards and over $130K in patient assistance grants. This has happened only because of our generous supporters and community. Please help us continue the important work we do!

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MONEY RAISED
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The Team: $400 TOTAL RAISED SO FAR

Fundraiser Title

Carla Miller

Amount Raised

$200

Fundraiser Title

DRAVET SYNDROME FOUNDATION INC

Amount Raised

$125

 

3% Raised of $5,000 Goal

Fundraiser Title

Mary Anne Meskis

Amount Raised

$50

Fundraiser Title

misty Ried

Amount Raised

$25

Fundraiser Title

Jamie Cohen

Amount Raised

$0

Fundraiser Title

Nichelle Dominguez

Amount Raised

$0

Fundraiser Title

Timothy Wood

Amount Raised

$0

Fundraiser Title

Kate Hintz

Amount Raised

$0

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