BENEFITING: Dysautonomia International
ORGANIZER: The Duque Family
EVENT: Run for DREAMS
EVENT DATE: Oct 08, 2016
At 10 years old, I was diagnosed with Dysautonomia/Postural Orthostatic Tachycardia Syndrome. At that moment, my life changed forever.
My daily symptoms consisted of fainting, legs giving out so I just fell, dizziness 24/7, gastrointestinal pain, autonomic neuropathy pain, tachycardia, bradycardia, severe anxiety and depression, trembling/shaking uncontrollably, brain fog, and many, many other symptoms.
Due to the severity of my symptoms, I was forced to be homeschooled. Within my 5th grade year, I endured 72 doctor's visits, 43 physical therapy sessions, 5 hospital visits, and countless tests.
I was fortunate enough to get diagnosed within 15 days of my first symptom, however, the average diagnosis is 6 years. Can you imagine being ill - with no idea what is wrong, no medication, no meidcal help for 6 years?! We need to spread the word - bring awareness so that others do not suffer.
Please join me in raising awareness. If you are able to join the Run For Dreams, I would be SO happy to see you there. If you are unable to participate, please consider donating. Any amount is not only needed, but greatly appreciated.
Together we can and WILL make a difference.
- Cristina Duque
Imagine waking up one morning feeling like you had the flu, and never feeling better. Imagine not being able to drive, sit at the table with family for dinner or even shower on your own. Imagine being told by a doctor that you have a lifelong, debilitating illness, but they have no medicine or treatment for you.
These are common realities of those who suffer from DYSAUTONOMIA, a disorder of the autonomic nervous system, affecting approximately 70 million people worldwide. Sadly, most people have never heard of it, including many doctors, and as a result, patients are slow to be properly diagnosed and left with unclear treatment plans and ineffective medicines.
For this reason, we have organized a 5K and fun run to help bring awareness and generate funds for research – more research means faster diagnosis, proper treatment options, and potentially, even a cure!
We invite you to participate in the inaugural Run for DREAMS, on Saturday, October 8, 2016, at Burroughs Park in Tomball, TX, benefiting Dysautonomia International. This event will feature a 5K Trail Run, as well as a 1K Fun Run/Walk.
We appreciate your support to make our awareness event a success!
- $25 starting July 8, 2016
- $30 after July 31, 2016
- $35 after August 31, 2016
- $40 after September 30, 2016
Registration includes a t-shirt and post-race snacks and refreshments. T-shirts are guaranteed only to those registered by Friday, September 23, 2016, so please register early. Stroller riders are free.
Can’t make it out to the event but want to support the cause and get a shirt mailed to you? You can Sleep in for DREAMS for just $30!
If you cannot run or walk the 5K or 1K (or choose not to), please still come out to the event! It's a beautiful park with several family-friendly activities, with multiple playgrounds, volleyball courts, and a fishing pier for everyone to enjoy – and you will be supporting a great cause!
The funds raised from this walk will be donated to Dysautonomia International, a 501(c)(3) non-profit organization. Their mission is to identify the causes and cures for all forms of dysautonomia, and to enhance the quality of life for people currently living with these illnesses. For more information, please visit http://www.DysautonomiaInternational.org.
“There is no cure for any form of dysautonomia at this time, and despite the high prevalence of dysautonomia, most patients take several years to get diagnosed due to a lack of awareness amongst the public and within the medical profession. Dysautonomia International is funding research to develop better treatments, and hopefully someday a cure for each form of dysautonomia.”
Hope for D.R.E.A.M.S. is Houston-based organization that is fighting for Dysautonomia Research, Education, Awareness, Medical advancement and Support. For more information about the organization, please visit facebook.com/hope4dysautonomia.
Thank you for helping us make D.R.E.A.M.S. come true!