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Dylan's SMA/Birthday Fund

Organized by: Angela Chau

Angela's Photo

THE STORY:

Dylan is a happy, bright three year old boy, and loves playing with his two big brothers. He also loves kisses from mommy, hugs from daddy, and both grandma's cooking. He goes to preschool, plays at the park, and loves to play with Stormtroopers, dinosaurs, puzzles and books.

But unlike his family and peers, Dylan can't walk.

Dylan was born a healthy 8 lbs. 10 oz, and was a typical healthy child. However, he never started walking and after meeting with two neurologists, he was diagnosed in 2014, right before his 2nd birthday, with Spinal Muscular Atrophy (SMA), Type 2. In the past year, Dylan has lost the ability to bear weight on his legs, crawl, and roll over. He frequently gets respiratory illnesses and has difficulty with recovering. However his spirit continues to thrive and he still loves life.

As we are learning, a child with SMA requires so much therapy as well as medical equipment that our family is not prepared financially to obtain. Insurance has helped some, but has also denied most of the equipment that he needs, so we have paid for some things out of pocket. They have denied a power wheelchair saying it is not medically necessary (we are appealing this decision). Accessible vans, bath chairs, and home modifications are also necessities not covered by insurance.

For Dylan's upcoming 4th birthday, we would like to ask for any donations you can spare to assist us in obtaining the necessary treatments (i.e. aquatic physical therapy) and medical equipment (i.e. bath chair, stair lift, ramps, possibly power wheelchair) not covered by our insurance. We are also in the market for a wheelchair accessible van so that when we can get a power wheelchair for Dylan, it will be much easier to transport it.

About SMA:

SMA (spinal muscular atrophy) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants.

SMA is caused by a mutation in the survival motor neuron gene 1 (SMN1). In a healthy person, this gene produces a protein that is critical to the function of the nerves that control our muscles. Without it, those nerve cells cannot properly function and eventually die, leading to debilitating and often fatal muscle weakness.

SMA affects approximately 1 in 10,000 babies, and about 1 in every 50 Americans is a genetic carrier. SMA can affect any race or gender.

There are four primary types of SMA—I, II, III, and IV—based on age of onset and highest physical milestone achieved.

Individuals with SMA have difficulty performing the basic functions of life, like breathing and swallowing. However, SMA does not affect a person’s ability to think, learn, and build relationships with others.

Though there is currently no approved treatment for SMA, there’s great reason for hope. We know what causes SMA and what we need to do to develop effective therapies, and we’re on the verge of major breakthroughs that will strengthen our children’s bodies, extend life, and eventually lead to a cure.

Dylan and our family are humbled that you are reading our story and are grateful for your generosity at any level. Thank you so much in advance for your support!

$6,104

 

12% Raised of $50,000 Goal

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  • The Hua's (UK)

    $250

  • Michael, Michelle and Elijah Hua

    $250

  • Peter, Clare & Sarah Hua

    $1,000

  • Peasley family

    $100

  • JJ Chancla

    $100

  • Amy Lee

    $25

  • Anonymous

     

  • Simon Lam and Cynthia Leung

    $100

  • nanci chau

    $100

  • Anonymous

    $100

  • Sawyer & Roman Sarinana

     

  • Anonymous

     

  • Jingkun Lin

     

  • The Lam Family

     

  • Mickey & Gina Nakamura

     

  • Jimmy, Tania and Miro

    $100

  • Amy Kim

    $100

  • Burkle family

    $100

  • Anthony, Natalie and Jayden

    $250

  • From The Ongs. Happy birthday Dylan

    $500

  • Annie Cheung

    $50

  • Anonymous

    $100

  • The Sanchez Family

    $100

  • Julianna, Dennis, Lauren, Andrew & Olivia

    $50

  • Ken and Larraine Kasubuchi

    $250

  • Jenny Lee and Family

    $229.50

  • Tammy and Gregg Kasubuchi

    $250

  • Angie Y.

    $50

  • Art, Lindy and Benjamin

    $250

  • Juliam, Jeremy, Olivia & Same

     

  • Anonymous

     

  • Amy Hayashi

    $25

  • Romero Family

     

  • Liz de la Paz

    $100

  • Scot, Debbie, and Brandon Tay-Lam

    $100

  • Ed, Mindi & Zachary

    $250

  • Anonymous

     

  • Stella Lam

    $50

  • Lisu Chen and Steve Chi

    $100

  • Auntie Jill

    $100

  • Carter Choi and Family

    $100

  • Emmeline

     

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Organized by

Angela Chau

This is a direct to organizer fundraiser.

Donor Comments

Emmeline

Emmeline

1 year ago

Carter Choi and Family

Carter Choi and Family

DONATION: $100

Happy Birthday Dylan... May the 4th (force) be with you! 2 years ago

Auntie Jill

Auntie Jill

DONATION: $100

Happy Birthday Dylan! 2 years ago

Lisu Chen and Steve Chi

Lisu Chen and Steve Chi

DONATION: $100

2 years ago

Stella Lam

Stella Lam

DONATION: $50

Stay strong and positive. 2 years ago

Anonymous

ANONYMOUS

Happy Birthday Dylan! 2 years ago

Ed, Mindi & Zachary

Ed, Mindi & Zachary

DONATION: $250

Happy Birthday to our little Storm Trooper! :) 2 years ago

Scot, Debbie, and Brandon Tay-Lam

Scot, Debbie, and Brandon Tay-Lam

DONATION: $100

Happy Birthday Dylan :) 2 years ago

Liz de la Paz

Liz de la Paz

DONATION: $100

Happy Birthday Dylan!!! 2 years ago

Romero Family

Romero Family

Happy Birthday Dylan 2 years ago

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