ebresearch's profile image - click for profile

EB Research Partnership's Fundraiser:

2017 NYC Marathon

EB Research Partnership's Photo

THE STORY:

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

$52,674

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Donna Rosen / Glen Wolther

    $25

  • Taylor Burke

     

  • Chester Grabowski

     

  • Crystal

    $25

  • Big Suz

     

  • Petra Chlpanova

     

  • Cheryl & Rick Serynek

    $50

  • Craig Lubman

    $50

  • Anonymous

    $20

  • Jacqui

    $25

  • Sabrina Gonzales

    $50

  • Kaupin & Purvi Brahmbhatt

    $50

  • Elizabeth Fitzgerald

    $50

  • Alison Griffo

    $25

  • Julia Sattler

     

  • Brent McCreary

     

  • Carlie Lindower

     

  • James Doherty

    $250

  • Diana Adams

     

  • Sean and Andra

    $150

  • Kim & Tom Troy

    $500

  • Renee Romanelli

     

  • Emily Meszkat

     

  • Marc

    $50

  • Kathy Park

    $25

  • Jaclyn Reich

     

  • The Kmetz Family

    $100

  • Lori Lamirata

    $25

  • Kert and Mary

     

  • Caitlin Cronin

    $25

  • Stephen Meyler

    $220

  • Annmarie N

     

  • Cate & Lilly Sciortino

     

  • Tessa Dunning

    $25

  • Jessica & Michael Trano

     

  • The Young’s - Rob, Tara, Leah & Kristina

    $50

  • Cape House Gallery

    $100

  • Your friend Rich!

    $100

  • Denny

     

  • Greta and Jim McElvanna

    $50

  • Laudine Vallarta

     

  • Joseph

    $20

  • Natalie Bertucci

    $25

  • Karriann Seifert

     

  • Robert Hegedus

    $25

  • Wendy Li

    $25

  • Lisa V

    $50

  • Rich Haugen

    $25

  • Jonathan

    $25

  • Paul Montaut

    $50

  • Rich Schiavo

    $25

  • Emily & Cody Dripchak

    $250

  • Keather Kehoe & Jim Garrett

    $50

  • Marni and Michael

    $500

  • marni and michael

    $500

  • Alison Butler

     

  • Ross L Schiller

    $25

  • Katie, Tommy & Declan Smith

    $50

  • Joann Lyden

    $50

  • Jen

    $25

  • Tom and Elaine Smith

    $100

  • olinda cedeno

     

  • Cathy Lucas

    $25

  • Joan Thompson

    $25

  • Matthew Hull

     

  • Giana And Eva

    $50

  • Ronald Friedman

    $10

  • Catie Osborn

    $25

  • Scott & Caroyln

    $50

  • Anonymous

    $100

  • DeStefano Family

    $50

  • Anonymous

     

  • Jen Thomas

    $100

  • Nancy Harbin

    $200

  • Garrett & Karina

     

  • Billy Ahearn

    $50

  • Claes

    $50

  • Broder!

    $25

  • Familjen Gustafsson

    $50

  • Bergström twins

     

  • Coach

    $25

  • Allison Legge

    $50

  • Summer

    $59

  • John McTigue

    $50

  • John Primm

    $50

  • William&Jonatan

    $25

  • Max DeMasters

    $25

  • Svetlana

    $100

  • Mary Burke

    $25

  • Kerstin Solbu

     

  • Patrik Lindqvist

    $385

  • Jennifer Burrows

    $2,250

  • Davy Tiernan

    $25

  • Valentina Gjidoda

     

  • Barry and Claudia

    $50

  • Mike Crowley

    $100

  • Harris & Paul Krupp

    $500

  • Nancy Gibbs

    $200

  • Anonymous

    $50

  • laura hull

    $125

  •  
  •  
  •  

The Team: $52,674 TOTAL RAISED SO FAR

Fundraiser Title

Caitlin Layng

Amount Raised

$9,025

Fundraiser Title

ANGUS VAIL

Amount Raised

$4,085

Fundraiser Title

Katie Scotko

Amount Raised

$3,700

Fundraiser Title

caroline Raynor

Amount Raised

$3,680

Fundraiser Title

Kate Zelles

Amount Raised

$3,205

Fundraiser Title

Matty Cogliano

Amount Raised

$3,200

 

128% Raised of$2,500 Goal

Fundraiser Title

Julie Daugherty

Amount Raised

$3,050

Fundraiser Title

Cathy Molino

Amount Raised

$3,025

 

121% Raised of$2,500 Goal

Donor Comments

laura hull

laura hull

DONATION: $125

2 years ago

Anonymous

ANONYMOUS

DONATION: $50

2 years ago

Nancy Gibbs

Nancy Gibbs

DONATION: $200

Proud of you! 2 years ago

Harris & Paul Krupp

Harris & Paul Krupp

DONATION: $500

For Caitlin 2 years ago

Mike Crowley

Mike Crowley

DONATION: $100

2 years ago

Barry and Claudia

Barry and Claudia

DONATION: $50

2 years ago

Valentina Gjidoda

Valentina Gjidoda

2 years ago

Davy Tiernan

Davy Tiernan

DONATION: $25

2 years ago

Jennifer Burrows

Jennifer Burrows

DONATION: $2,250

2 years ago

Patrik Lindqvist

Patrik Lindqvist

DONATION: $385

2 years ago