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ANGUS VAIL's Fundraiser:

2017 NYC Marathon

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ANGUS VAIL

THE STORY:

Our friend John Hudson Dilgen is 14, and he's battled valiantly his whole life with EB, a genetic condition that causes his skin and even his mouth and throat to constantly blister and scar, which of course is terribly painful and debilitating. John is an amazing kid, and most of the time maintains a positive attitude to what most of us would consider to be unbearable. 

There's some hopeful treatments and gene therapy advances in the pipeline, but we need to keep raising money to advance the research. For John, this race for a cure is urgent and absolutely personal.

Thanks for helping us help John, and the many other children who must bear this condition minute-by-minute, day by day.

Thanks, Angus

FROM THE EB RESEARCH PARTNERSHIP:  

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

DONATE

To This Fundraiser

$3,310

MONEY RAISED
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  • Ivan

     

  • Helena and James

     

  • Patrick Ogle

    $25

  • Adrienne Schulte

    $100

  • Kaz Hori

    $50

  • Barry Crump

    $250

  • Veronica Jayne Cook

    $25

  • Louise

    $50

  • The McInerney's

    $50

  • Anonymous

     

  • gloria monaghan

    $25

  • Nancy Florkowski

    $25

  • Ken Scurr

    $50

  • Trish Key

    $100

  • Anonymous PS

    $1,000

  • Jane ashton

    $900

  • Sierra Tothero

    $10

  • Anonymous

    $175

  • Dorita

    $50

  • Andrew Blair

    $50

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Fundraise for this Campaign

The Team: $34,525 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Caitlin Layng

Amount Raised

$6,700

Fundraiser Title

caroline Raynor

Amount Raised

$3,580

Fundraiser Title

Katie Scotko

Amount Raised

$3,320

Fundraiser Title

ANGUS VAIL

Amount Raised

$3,310

Fundraiser Title

Julie Daugherty

Amount Raised

$2,450

Fundraiser Title

Matty Cogliano

Amount Raised

$2,251

 

90% Raised of $2,500 Goal

Fundraiser Title

Kate Zelles

Amount Raised

$1,980

Fundraiser Title

Eamon Troy

Amount Raised

$1,835

Donor Comments

Andrew Blair

Andrew Blair

DONATION: $50

$12.50 per hour? 6 months ago

Dorita

Dorita

DONATION: $50

run angus, run like the wind! 6 months ago

Anonymous

ANONYMOUS

DONATION: $175

Good Luck Angus 6 months ago

Sierra Tothero

Sierra Tothero

DONATION: $10

6 months ago

Jane ashton

Jane ashton

DONATION: $900

6 months ago

Anonymous PS

Anonymous PS

DONATION: $1,000

Tribute to John Hudson Dilgen 6 months ago

Trish Key

Trish Key

DONATION: $100

6 months ago

Ken Scurr

Ken Scurr

DONATION: $50

8 months ago

Nancy Florkowski

Nancy Florkowski

DONATION: $25

8 months ago

gloria monaghan

gloria monaghan

DONATION: $25

8 months ago