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Caitlin Layng's Fundraiser:

2017 NYC Marathon

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Caitlin's Photo
Caitlin Layng

THE STORY:

 In November, I will be running the NYC Marathon in honor of my dear friend Emily’s daughter, Elodie, and all families living with Epidermolysis Bullosa (EB). 

At birth, Elodie was diagnosed EB, a rare genetic skin condition caused by a lack of collagen 7, one of the proteins that holds the layers of the skin together. As a result, her skin is incredibly fragile and blisters or breaks with little trauma.  There is no treatment or cure for EB today and those afflicted often do not make it past their 30th birthdays. Management of the disease requires extensive bandaging to prevent and heal wounds. However, hope is on the horizon! Thanks to the work of the EB Research Partnership (EBRP), the largest foundation in the world focused on finding a cure for this disease, there are now more clinical trials happening right now than ever before. 

EB can be devastating, but in spite of her condition Elodie is a beautiful, happy baby that loves boat rides, the pool and trying to get her hands on her mama’s iPhone:) She is blessed to have two amazing parents that are constantly educating themselves, advocating for her and bravely facing life with EB each and every day. As a parent myself who often feels like my plate is full, I am in awe of Emily and Dave and the unthinkable challenges they face on a daily basis. EBRP has been a fantastic source of support for them and their whole family, and by donating to our cause today you can help them continue their fight for a cure for Elodie.

Team Elodie had an impressive showing in March at the NY Half Marathon and I want to continue the momentum in November. With your help, EBRP will fund clinical trials of treatments and potential cures that will make a difference for Elodie and others living with EB. These are not shots in the dark - the science is there and we need to make sure the trials stay funded.


To learn more about EB and the work of EBRP, please visit: https://ebresearch.org/what-is-eb/

DONATE

To This Fundraiser

$6,200

MONEY RAISED
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  • Kingsley Rooney

    $100

  • Anonymous

     

  • John& Amanda Layng

    $250

  • Abbie Durkin

    $50

  • Kristen Kevorkian

    $50

  • Susan Moreland

    $50

  • Dave and Kristan Khtikian

    $250

  • Kate and Brian McIntosh

    $50

  • Lejuez girls

    $50

  • Anonymous

    $150

  • Tinky Maritzen

    $100

  • Emily Jabbour

    $50

  • Maria Richardson

    $25

  • The Whatley

     

  • The Colellas

    $100

  • The Martinic Family

    $50

  • The Jonash's

    $250

  • Carolyn and John Fletcher

     

  • Aimee Dimiero

    $50

  • Nina & Craig Henderson

    $50

  • The Kondi Family

     

  • Jennifer Kherani

    $100

  • The Casey Family

     

  • Hudspeth Family

     

  • Topher Brennan

    $250

  • The Hanley Family

     

  • The Vernace Family

     

  • The King Family

     

  • Shannon

    $50

  • The Thigpen Family

    $50

  • The Waluch Family

     

  • The Connors Family

    $100

  • Mike Rouse

     

  • The Nadler Family

    $100

  • The Ingrassia Family

    $100

  • Nancy DeFillipo Guarraci

    $50

  • Erika Lee

    $50

  • Chris Boundy

    $50

  • Mamie & Bubba

    $250

  • The Khasigians

     

  • The Mercurio Family

    $100

  • The Cashion Family

    $100

  • The Dolans

    $100

  • Vern and Lynne Bond

    $150

  • Maria Rosario

     

  • Annie Teillon

    $100

  • S&Q

     

  • McKiernan Family

     

  • Pymm Family

    $100

  • Julie Engerran

    $50

  • The Langes

    $250

  • Stephanie St. Thomas

     

  • Alissa Tofias

     

  • Susan and Steve St. Thomas

    $250

  • The Halls

    $200

  • Ali & Chris Slack

    $50

  • Driscoll family

    $100

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Fundraise for this Campaign

The Team: $24,671 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Caitlin Layng

Amount Raised

$6,200

Fundraiser Title

ANGUS VAIL

Amount Raised

$3,310

Fundraiser Title

Julie Daugherty

Amount Raised

$2,450

Fundraiser Title

Katie Scotko

Amount Raised

$2,195

Fundraiser Title

Matty Cogliano

Amount Raised

$1,826

 

73% Raised of $2,500 Goal

Fundraiser Title

Patrik Lindqvist

Amount Raised

$1,715

Fundraiser Title

Katie Henderson

Amount Raised

$1,375

 

55% Raised of $2,500 Goal

Fundraiser Title

Cathy Molino

Amount Raised

$1,050

 

42% Raised of $2,500 Goal

Donor Comments

Driscoll family

Driscoll family

DONATION: $100

11 hours ago

Ali & Chris Slack

Ali & Chris Slack

DONATION: $50

what a great cause. such a sweet little girl. <3 1 week ago

The Halls

The Halls

DONATION: $200

1 week ago

Susan and Steve St. Thomas

Susan and Steve St. Thomas

DONATION: $250

2 weeks ago

Alissa Tofias

Alissa Tofias

Go Caitlin go! 2 weeks ago

Stephanie St. Thomas

Stephanie St. Thomas

Go, Caitlin! 4 weeks ago

The Langes

The Langes

DONATION: $250

4 weeks ago

Julie Engerran

Julie Engerran

DONATION: $50

4 weeks ago

Pymm Family

Pymm Family

DONATION: $100

4 weeks ago

McKiernan Family

McKiernan Family

1 month ago