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Caitlin Layng's Fundraiser:

2017 NYC Marathon

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Caitlin's Photo
Caitlin Layng

THE STORY:

 In November, I will be running the NYC Marathon in honor of my dear friend Emily’s daughter, Elodie, and all families living with Epidermolysis Bullosa (EB). 

At birth, Elodie was diagnosed EB, a rare genetic skin condition caused by a lack of collagen 7, one of the proteins that holds the layers of the skin together. As a result, her skin is incredibly fragile and blisters or breaks with little trauma.  There is no treatment or cure for EB today and those afflicted often do not make it past their 30th birthdays. Management of the disease requires extensive bandaging to prevent and heal wounds. However, hope is on the horizon! Thanks to the work of the EB Research Partnership (EBRP), the largest foundation in the world focused on finding a cure for this disease, there are now more clinical trials happening right now than ever before. 

EB can be devastating, but in spite of her condition Elodie is a beautiful, happy baby that loves boat rides, the pool and trying to get her hands on her mama’s iPhone:) She is blessed to have two amazing parents that are constantly educating themselves, advocating for her and bravely facing life with EB each and every day. As a parent myself who often feels like my plate is full, I am in awe of Emily and Dave and the unthinkable challenges they face on a daily basis. EBRP has been a fantastic source of support for them and their whole family, and by donating to our cause today you can help them continue their fight for a cure for Elodie.

Team Elodie had an impressive showing in March at the NY Half Marathon and I want to continue the momentum in November. With your help, EBRP will fund clinical trials of treatments and potential cures that will make a difference for Elodie and others living with EB. These are not shots in the dark - the science is there and we need to make sure the trials stay funded.


To learn more about EB and the work of EBRP, please visit: https://ebresearch.org/what-is-eb/

$9,025

MONEY RAISED
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  • Kingsley Rooney

    $100

  • Anonymous

     

  • John& Amanda Layng

    $250

  • Abbie Durkin

    $50

  • Kristen Kevorkian

    $50

  • Susan Moreland

    $50

  • Dave and Kristan Khtikian

    $250

  • Kate and Brian McIntosh

    $50

  • Lejuez girls

    $50

  • Anonymous

    $150

  • Tinky Maritzen

    $100

  • Emily Jabbour

    $50

  • Maria Richardson

    $25

  • The Whatley

     

  • The Colellas

    $100

  • The Martinic Family

    $50

  • The Jonash's

    $250

  • Carolyn and John Fletcher

     

  • Aimee Dimiero

    $50

  • Nina & Craig Henderson

    $50

  • The Kondi Family

     

  • Jennifer Kherani

    $100

  • The Casey Family

     

  • Hudspeth Family

     

  • Topher Brennan

    $250

  • The Hanley Family

     

  • The Vernace Family

     

  • The King Family

     

  • Shannon

    $50

  • The Thigpen Family

    $50

  • The Waluch Family

     

  • The Connors Family

    $100

  • Mike Rouse

     

  • The Nadler Family

    $100

  • The Ingrassia Family

    $100

  • Nancy DeFillipo Guarraci

    $50

  • Erika Lee

    $50

  • Chris Boundy

    $50

  • Mamie & Bubba

    $250

  • The Khasigians

     

  • The Mercurio Family

    $100

  • The Cashion Family

    $100

  • The Dolans

    $100

  • Vern and Lynne Bond

    $150

  • Maria Rosario

     

  • Annie Teillon

    $100

  • S&Q

     

  • McKiernan Family

     

  • Pymm Family

    $100

  • Julie Engerran

    $50

  • The Langes

    $250

  • Stephanie St. Thomas

     

  • Alissa Tofias

     

  • Susan and Steve St. Thomas

    $250

  • The Halls

    $200

  • Ali & Chris Slack

    $50

  • Driscoll family

    $100

  • Fish Family

     

  • Jane and Bill Cullinan

    $250

  • The Wallach Family

    $100

  • Sharon and Steve Kubik

    $500

  • The LaRosa Family

    $200

  • Jules & AWO

     

  • Candace Crowley

    $500

  • Renee Romanelli

     

  • Emily Meszkat

     

  • Jaclyn Reich

     

  • The Kmetz Family

    $100

  • Mike Crowley

    $100

  • Harris & Paul Krupp

    $500

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The Team: $52,674 TOTAL RAISED SO FAR

Fundraiser Title

Caitlin Layng

Amount Raised

$9,025

Fundraiser Title

ANGUS VAIL

Amount Raised

$4,085

Fundraiser Title

Katie Scotko

Amount Raised

$3,700

Fundraiser Title

caroline Raynor

Amount Raised

$3,680

Fundraiser Title

Kate Zelles

Amount Raised

$3,205

Fundraiser Title

Matty Cogliano

Amount Raised

$3,200

 

128% Raised of $2,500 Goal

Fundraiser Title

Julie Daugherty

Amount Raised

$3,050

Fundraiser Title

Cathy Molino

Amount Raised

$3,025

 

121% Raised of $2,500 Goal

Donor Comments

Harris & Paul Krupp

Harris & Paul Krupp

DONATION: $500

For Caitlin 3 months ago

Mike Crowley

Mike Crowley

DONATION: $100

4 months ago

The Kmetz Family

The Kmetz Family

DONATION: $100

We love you! Good Luck! Enjoy! 4 months ago

Jaclyn Reich

Jaclyn Reich

Can’t wait to cheer you on!!! 4 months ago

Emily Meszkat

Emily Meszkat

Go Caitlin!!! 4 months ago

Renee Romanelli

Renee Romanelli

4 months ago

Candace Crowley

Candace Crowley

DONATION: $500

4 months ago

Jules & AWO

Jules & AWO

4 months ago

The LaRosa Family

The LaRosa Family

DONATION: $200

Elodie 4 months ago

Sharon and Steve Kubik

Sharon and Steve Kubik

DONATION: $500

Go Team Elodie 4 months ago