BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
I will be running the 2017 NYC Marathon for the EB Research Partnership again this year! I couln't be more excited to support EB. Please take a minute out of your day to donate to this incredible cause. Any amount helps! Thank you so much!!
Thanks for your support, I love you all!
EB Research Partnership wrote -
We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.
We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.
Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
Partner with us in our mission to further life-saving research.