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Julie Daugherty's Fundraiser:

2017 NYC Marathon

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Julie Daugherty

THE STORY:

Our friends John and Faye in Staten Island have a son, John Hudson, who is one of the bravest kids we've ever met. He has a debilitating genetic condition called Epidermolysis Bullosa (EB) where his skin can blister at the slightest touch, and even the inside surfaces of his mouth, throat and esophagus can develop sores and scar over. He's in constant pain, and it pretty much hurts him to do everything. 

But there's hope and progress with new genetic therapies and procedures, and John Hudson will hopefuly receive the benefits of some of these soon. But we need to keep funding the research and keep the momentum - and promise - going on. Please help us raise money not only for John Hudson, but for EB research to help, and eventually cure, thousands of brave kids like John.

Thanks, Julie

** For more info, please read the message following from the EB Research Partnership: 

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

$3,050

MONEY RAISED
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  • Giarna TeKanawa

    $100

  • Anonymous

    $1,000

  • Aaron & Jacqueline Van Duyne

    $500

  • Julie Daugherty

    $500

  • Julie Daugherty

    $250

  • Julie Daugherty

    $100

  • Megan 😊

    $50

  • Tessa Dunning

    $25

  • Marni and Michael

    $500

  • olinda cedeno

     

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The Team: $52,674 TOTAL RAISED SO FAR

Fundraiser Title

Caitlin Layng

Amount Raised

$9,025

Fundraiser Title

ANGUS VAIL

Amount Raised

$4,085

Fundraiser Title

Katie Scotko

Amount Raised

$3,700

Fundraiser Title

caroline Raynor

Amount Raised

$3,680

Fundraiser Title

Kate Zelles

Amount Raised

$3,205

Fundraiser Title

Matty Cogliano

Amount Raised

$3,200

 

128% Raised of$2,500 Goal

Fundraiser Title

Julie Daugherty

Amount Raised

$3,050

Fundraiser Title

Cathy Molino

Amount Raised

$3,025

 

121% Raised of$2,500 Goal

Donor Comments

olinda cedeno

olinda cedeno

2 years ago

Marni and Michael

Marni and Michael

DONATION: $500

2 years ago

Tessa Dunning

Tessa Dunning

DONATION: $25

2 years ago

Megan 😊

Megan 😊

DONATION: $50

2 years ago

Julie Daugherty

Julie Daugherty

DONATION: $100

2 years ago

Julie Daugherty

Julie Daugherty

DONATION: $250

2 years ago

Julie  Daugherty

Julie Daugherty

DONATION: $500

2 years ago

Aaron & Jacqueline Van Duyne

Aaron & Jacqueline Van Duyne

DONATION: $500

John Hudson Tribute 2 years ago

Anonymous

Anonymous

DONATION: $1,000

John Hudson Dilgen is a true inspiration of courage. 2 years ago

Giarna TeKanawa

Giarna TeKanawa

DONATION: $100

2 years ago