BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
Our friends John and Faye in Staten Island have a son, John Hudson, who is one of the bravest kids we've ever met. He has a debilitating genetic condition called Epidermolysis Bullosa (EB) where his skin can blister at the slightest touch, and even the inside surfaces of his mouth, throat and esophagus can develop sores and scar over. He's in constant pain, and it pretty much hurts him to do everything.
But there's hope and progress with new genetic therapies and procedures, and John Hudson will hopefuly receive the benefits of some of these soon. But we need to keep funding the research and keep the momentum - and promise - going on. Please help us raise money not only for John Hudson, but for EB research to help, and eventually cure, thousands of brave kids like John.
** For more info, please read the message following from the EB Research Partnership:
We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.
We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.
Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
Partner with us in our mission to further life-saving research.