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Matty Cogliano's Fundraiser:

2017 NYC Marathon

Matty's Photo
Matty's Photo
Matty Cogliano

THE STORY:

My mom has lived her entire life with the debilitating genetic skin condition Epidermolysis Bullosa. She can’t walk or stand for very long before getting blisters on the bottom of her feet. It takes her hours each morning to clean and bandage her body before getting ready for the day. Her skin blisters at the slightest touch. She lives every day in pain. EB has a constant and lasting effect on every moment of her life.

And, really, that is nothing compared to the non-medical impact the disease has had on her life. The stories of the ceaseless teasing she endured in school, of her getting kicked out of swimming pools at hotels as a child on family vacations because the staff and other guests just didn’t care to understand, and especially about parents of my own elementary school classmates being concerned about her helping with school projects still break my heart and infuriate me.

My mom is the bravest person I know…but she considers herself “one of the lucky one”. When I started to meet others, children, with the same condition I began to understand why she feels this way. She survived. She lives a normal life. Most are not as lucky. Many are wheel chair bound. Many must have regular surgeries to separate fingers when blisters have fused them together. Many don’t survive because blistering in the esophagus prevents the ability to simply eat and breathe.

My mom is lucky. My mom is an inspiration.

I am running the 2017 New York Marathon to raise money and awareness to help find a cure for EB!!! Please, please, consider giving whatever you can to help us continue the tremendous strides being made to cure the worst disease you never heard of.

For more information continue below for a note from the EB Research Partnership -

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

$3,200

MONEY RAISED
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  • Craig

    $25

  • Dorothy Escribano

    $50

  • Nicholas Gibbon

    $50

  • Kiera

    $50

  • John & Rose Kundle

    $250

  • Dani & Danny Naish

    $25

  • Jason & Holly Sutton

    $50

  • dawn stevens

    $25

  • DJ and Ava

    $100

  • Ali

    $50

  • DAN COGLIANO

    $251

  • Mom❣️

    $100

  • Roo

    $50

  • Rebecca Peterson

    $50

  • Jeff & Dawn

     

  • Sarah

     

  • Chris Doyle

    $25

  • Jr & marge

    $25

  • Julie Jefferson

    $15

  • Heather A Englander

    $25

  • Travis Sawyer

    $50

  • Jay Mack

    $25

  • Michelle

    $50

  • NICK "S****E HS PAL"

    $50

  • Marie-Claire

    $100

  • Danielle S

    $50

  • Bespoke Theatricals

     

  • Kate

    $40

  • Allison DeLuca

    $50

  • Francesca

     

  • Kelly Ann Gray and Mike Kelly

    $100

  • Andrew B

     

  • Anthony LaMantia

    $150

  • Marilyn Siegel

    $10

  • Alisa Martin

    $250

  • Marcia Goldberg

     

  • Julia Sattler

     

  • Brent McCreary

     

  • Marc

    $50

  • Kert and Mary

     

  • Greta and Jim McElvanna

    $50

  • Garrett & Karina

     

  • Summer

    $59

  • Nancy Gibbs

    $200

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128% Raised of $2,500 Goal

The Team: $52,674 TOTAL RAISED SO FAR

Fundraiser Title

Caitlin Layng

Amount Raised

$9,025

Fundraiser Title

ANGUS VAIL

Amount Raised

$4,085

Fundraiser Title

Katie Scotko

Amount Raised

$3,700

Fundraiser Title

caroline Raynor

Amount Raised

$3,680

Fundraiser Title

Kate Zelles

Amount Raised

$3,205

Fundraiser Title

Matty Cogliano

Amount Raised

$3,200

 

128% Raised of $2,500 Goal

Fundraiser Title

Julie Daugherty

Amount Raised

$3,050

Fundraiser Title

Cathy Molino

Amount Raised

$3,025

 

121% Raised of $2,500 Goal

Donor Comments

Nancy Gibbs

Nancy Gibbs

DONATION: $200

Proud of you! 8 months ago

Summer

Summer

DONATION: $59

Go Matty!!! 8 months ago

Garrett & Karina

Garrett & Karina

Supporting my forever friend Mattea for her big run! 8 months ago

Greta and Jim McElvanna

Greta and Jim McElvanna

DONATION: $50

...so proud of you, Matty! 8 months ago

Kert and Mary

Kert and Mary

Go gettem Matty! xox 8 months ago

Marc

Marc

DONATION: $50

8 months ago

Brent McCreary

Brent McCreary

8 months ago

Julia Sattler

Julia Sattler

8 months ago

Marcia Goldberg

Marcia Goldberg

9 months ago

Alisa Martin

Alisa Martin

DONATION: $250

9 months ago