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Matty Cogliano's Fundraiser:

2017 NYC Marathon

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Matty's Photo
Matty Cogliano

THE STORY:

My mom has lived her entire life with the debilitating genetic skin condition Epidermolysis Bullosa. She can’t walk or stand for very long before getting blisters on the bottom of her feet. It takes her hours each morning to clean and bandage her body before getting ready for the day. Her skin blisters at the slightest touch. She lives every day in pain. EB has a constant and lasting effect on every moment of her life.

And, really, that is nothing compared to the non-medical impact the disease has had on her life. The stories of the ceaseless teasing she endured in school, of her getting kicked out of swimming pools at hotels as a child on family vacations because the staff and other guests just didn’t care to understand, and especially about parents of my own elementary school classmates being concerned about her helping with school projects still break my heart and infuriate me.

My mom is the bravest person I know…but she considers herself “one of the lucky one”. When I started to meet others, children, with the same condition I began to understand why she feels this way. She survived. She lives a normal life. Most are not as lucky. Many are wheel chair bound. Many must have regular surgeries to separate fingers when blisters have fused them together. Many don’t survive because blistering in the esophagus prevents the ability to simply eat and breathe.

My mom is lucky. My mom is an inspiration.

I am running the 2017 New York Marathon to raise money and awareness to help find a cure for EB!!! Please, please, consider giving whatever you can to help us continue the tremendous strides being made to cure the worst disease you never heard of.

For more information continue below for a note from the EB Research Partnership -

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

DONATE

To This Fundraiser

$2,251

MONEY RAISED
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  • Craig

    $25

  • Dorothy Escribano

    $50

  • Nicholas Gibbon

    $50

  • Kiera

    $50

  • John & Rose Kundle

    $250

  • Dani & Danny Naish

    $25

  • Jason & Holly Sutton

    $50

  • dawn stevens

    $25

  • DJ and Ava

    $100

  • Ali

    $50

  • DAN COGLIANO

    $251

  • Mom❣️

    $100

  • Roo

    $50

  • Rebecca Peterson

    $50

  • Jeff & Dawn

     

  • Sarah

     

  • Chris Doyle

    $25

  • Jr & marge

    $25

  • Julie Jefferson

    $15

  • Heather A Englander

    $25

  • Travis Sawyer

    $50

  • Jay Mack

    $25

  • Michelle

    $50

  • NICK "S****E HS PAL"

    $50

  • Marie-Claire

    $100

  • Danielle S

    $50

  • Bespoke Theatricals

     

  • Kate

    $40

  • Allison DeLuca

    $50

  • Francesca

     

  • Kelly Ann Gray and Mike Kelly

    $100

  • Andrew B

     

  • Anthony LaMantia

    $150

  • Marilyn Siegel

    $10

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90% Raised of $2,500 Goal

Fundraise for this Campaign

The Team: $35,760 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Caitlin Layng

Amount Raised

$6,800

Fundraiser Title

caroline Raynor

Amount Raised

$3,580

Fundraiser Title

Katie Scotko

Amount Raised

$3,320

Fundraiser Title

ANGUS VAIL

Amount Raised

$3,310

Fundraiser Title

Kate Zelles

Amount Raised

$2,705

Fundraiser Title

Julie Daugherty

Amount Raised

$2,450

Fundraiser Title

Matty Cogliano

Amount Raised

$2,251

 

90% Raised of $2,500 Goal

Fundraiser Title

Eamon Troy

Amount Raised

$1,835

Donor Comments

Marilyn Siegel

Marilyn Siegel

DONATION: $10

In Honor of Dan and Delores Cogliano, husband and sister-in-law of my dear friend Elle. 2 days ago

Anthony LaMantia

Anthony LaMantia

DONATION: $150

6 days ago

Andrew B

Andrew B

1 week ago

Kelly Ann Gray and Mike Kelly

Kelly Ann Gray and Mike Kelly

DONATION: $100

1 week ago

Francesca

Francesca

1 week ago

Allison DeLuca

Allison DeLuca

DONATION: $50

1 week ago

Kate

Kate

DONATION: $40

1 week ago

Bespoke Theatricals

Bespoke Theatricals

1 month ago

Danielle S

Danielle S

DONATION: $50

1 month ago

Marie-Claire

Marie-Claire

DONATION: $100

1 month ago