BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
Meet John Hudson, a real-life superhero and a great inspiration. He was born with Epidermolysis Bullosa (EB), a severe skin disease that causes unthinkable pain. Take 2 minutes to watch this video with John Hudson and his family to better understand how horrible EB truly is.
I am soon back from rehabilitation and will target the TCS NYC Marathon 2017 - by running the race I will collect as much money as possible so that a cure for EB can be invented sooner rather then later.
I am proud to become a member of Team EB and are running a fundraise to find a cure against EB - please consider a donation to my fundraise and do your contribution in finding a cure to heal EB.