Many people on our team are running in honor of Teodora (Teya) Radovic who was diagnosed at birth with Recessive Dystrophic EB. At just 4 months old, Teya had an experimental bone marrow transplant which helped her condition. However, it was not a cure. Now two years old, Teya is a loving, smart, and adventurous little girl. Despite battling EB every day, she is full of life and doesn't let this condition get in her way. We are participating this year in honor of this amazing little fighter and others like her!
We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.
We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.
Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
Partner with us in our mission to further life-saving research.