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EB Research Partnership's Fundraiser:

Run for EB 2017 Shamrock Shuffle

EB Research Partnership's Photo

BENEFITING: EB Research Partnership

EVENT: 2017 Shamrock Shuffle 8K

EVENT DATE: Apr 02, 2017

THE STORY:

Many people on our team are running in honor of Teodora (Teya) Radovic who was diagnosed at birth with Recessive Dystrophic EB. At just 4 months old, Teya had an experimental bone marrow transplant which helped her condition. However, it was not a cure. Now two years old, Teya is a loving, smart, and adventurous little girl. Despite battling EB every day, she is full of life and doesn't let this condition get in her way. We are participating this year in honor of this amazing little fighter and others like her! 

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

DONATE

To This Fundraiser

$5,665

MONEY RAISED
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  • Mia Pokrajac

    $250

  • Dankic

    $50

  • Uros Martic/Sanja Gogic

    $50

  • Stojana Ivancevic

    $25

  • Marija Romić

    $50

  • Anonymous

    $50

  • Stana Radovic

    $50

  • Mr & Mrs Feeley

    $50

  • Kelley

     

  • Kody O'Connor

    $50

  • "tika Maja"

    $100

  • Milica Dragicevic

     

  • All American Painting & Decorating

    $600

  • Gordana Radmilovic

    $100

  • Sasa Jasnic

    $100

  • Bruno

    $25

  • Amy & Niko

    $50

  • Daja

    $25

  • Audreyna Wright

    $50

  • Adrian &Daniela Bighirel

    $50

  • Vatika Vig

    $50

  • Bora Grujic

     

  • ESCO Insurance Agency

    $50

  • Jeannette

    $25

  • Zeljka Kovacevic

    $25

  • Little One

    $50

  • Dejan and Millie

     

  • Sofija Grujic & Isabella Suero

    $118

  • Stevan Radojevic

    $25

  • Joanna Truszkowski

    $50

  • Teodora Radovic

    $100

  • Teodora

    $700

  • Teodora Radovic

    $100

  • Teodora

    $400

  • Teodora Radovic

    $100

  • Danny & Zana Vranic

    $25

  • Danny Vranic

    $25

  • Danny & Zana Vranic

    $25

  • Danny & Zana Vranic

    $25

  • Alyse Marcanti

    $25

  • Anonymous

    $100

  • Kevin Fitzgerald

    $25

  • Carrie

    $25

  • Colleen C.

    $25

  • Meggan Mroz

    $100

  • DAve b

    $100

  • Kristin Jones

    $25

  • Zachary Lunebach

    $25

  • John & Jan Comiskey

    $50

  • Todd, Carlin & Vera

    $50

  • Keri & Derek

    $25

  • Village Auto Mart

    $232

  • Trudi & Ray Winkler

    $20

  • Michael Boone

    $25

  • Ratko & Grozda Vranic

    $100

  • Andreea Bighirel

    $100

  • Dave Edwards

     

  • Patrick Scott

    $25

  • Matijevic

    $50

  • Anonymous

     

  • Jessica Coletto

    $25

  • Catt & Fam

    $50

  • Katarzyna Slota

    $25

  • Lisa, Mark & Ryan Vickers

    $25

  • Heather & Adrienne Sims

    $50

  • Jelena Todorovic

     

  • Laurie Schumacher

    $50

  • Danijela Vidovic

    $50

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Fundraise for this Campaign

The Team: $5,665 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Michael Pokrajac

Amount Raised

$2,345

 

469% Raised of $500 Goal

Fundraiser Title

Milana Radovic

Amount Raised

$1,375

 

138% Raised of $1,000 Goal

Fundraiser Title

Joanne Winkler

Amount Raised

$695

Fundraiser Title

Andreea Bighirel

Amount Raised

$650

 

217% Raised of $300 Goal

Fundraiser Title

Zana Daniel Vranic

Amount Raised

$600

 

120% Raised of $500 Goal

Fundraiser Title

EB Research Partnership

Amount Raised

$0

Donor Comments

Danijela Vidovic

Danijela Vidovic

DONATION: $50

3 months ago

Laurie Schumacher

Laurie Schumacher

DONATION: $50

1 year ago

Jelena Todorovic

Jelena Todorovic

1 year ago

Heather & Adrienne Sims

Heather & Adrienne Sims

DONATION: $50

1 year ago

Lisa, Mark & Ryan Vickers

Lisa, Mark & Ryan Vickers

DONATION: $25

1 year ago

Katarzyna Slota

Katarzyna Slota

DONATION: $25

1 year ago

Catt & Fam

Catt & Fam

DONATION: $50

It's not much but we love you for fighting our fight! 1 year ago

Jessica Coletto

Jessica Coletto

DONATION: $25

1 year ago

Anonymous

ANONYMOUS

1 year ago

Matijevic

Matijevic

DONATION: $50

Good luck Mikey 1 year ago