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EB HOPE FOUNDATION

The Path to a Cure Begins with Hope...

www.ebhope.org Tax ID 47-1401963

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Our Mission...

Our mission is to raise EB awareness and financial support for research efforts and organizations that support EB families. Our major initiative is the annual Walk for EB, which takes place in Cincinnati in early May.

 

About Us...

It all started with a walk…In the spring of 2008, family and friends came together for a walk to support a little boy with EB name Carson. Their goal was simply to spread awareness about this widely unheard of skin disease and possibly raise a few dollars to help with efforts to find a cure. Little did we know that what started as a simple walk would blossom to a non-profit organization committed to providing a path of hope for the EB community.

 

The Importance of EB Awareness...

We believe awareness about EB will change lives…awareness extends the path of people who can support efforts to help EB families and fund research needed for a cure. At the same time, awareness can also have a positive impact on the world around us by sharing the powerful stories of those living with EB. Just as we work to bring hope to those living with EB, we must always remember how much hope those living with EB bring us. A quote on the EB awareness website, www.ebinfoworld.com, summed it up perfectly -- “someone with EB has taught me that I am stronger than I ever thought I was or could be.”  

 

Most of our stories come from our organization’s inspirations, Carson and Kolbe, sons of David and Kristy Kissell. Despite all that they have to endure, Carson and Kolbe continue to walk their EB journey with great faith, courage, and joyful spirits.

 

This is why we do what we do at the EB Hope Foundation. We hope you will be a part of the journey as we walk the path towards a cure...