It is an honor to be a part of Team EBRP at the Twin Cities Marathon Weekend...running to help #healEB.
I would like you to meet my friend and running partner sweet Melina. Melina was born with a rare skin condition called Epidermolysis Bullosa (EB). Melina's EB causes serious wounds on different parts of her body; mostly affecting her feet, toes and ankles. This makes walking especially painful. So, this year, I have asked Melina to let me take her across the finish line and guess what? She said YES! Melina and I will be running to help find a cure and heal EB in honor of Sweet baby Cole who lost his battle with EB!
There is NO CURE for EB, however, there are amazing strides being made and there is tremendous hope in the research being done and she is a part the cure for EB. And it is happening right here in Minnesota!
(Please see article http://www.startribune.com/lifestyle/health/218242151.html?page=1&c=y )
These AMAZING breakthroughs are made possible because of dedicated people who are determined to find a cure and the people who help fund this vital research. You can be part of the cure by making a donation today and supporting Melina and me as well as Dr. Tolar and all of the researchers who are driven by their passion to #healEB!
**The EB Research Partnership (“EBRP”) is the largest nonprofit dedicated to funding research aimed at treating and curing Epidermolysis Bullosa (“EB”), a devastating and life-threatening genetic skin disorder that affects children from birth.
Individuals with EB lack a critical protein that binds their layers of skin together. Without this protein, even the slightest touch or friction can cause blisters and wounds all over the body—inside and out.**