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Ethan Zink's Fundraiser:

2015 Medtronic Twin Cities Marathon

Ethan's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT DATE: Oct 04, 2015

Ethan Zink

THE STORY:

 

Hi, name is Ethan, and I am eight years old, and I run for EB!

A few years ago, my mom met a little boy named Tripp, he had something called Epidermolysis Bullosa or EB. I decided to learn more about Epidermolysis Bullosa and that it is a very painful skin condition that causes kids to suffer and sometimes die.  It made me very sad to think that kids with EB do not always get to do things that kids should be able to do and that they often times were in pain.  I wanted to help.  So, last year I asked my mom if I could run with her and raise money.  She said yes and I raised almost $14,000 for Dr. Tolar at the University of Minnesota.  It made me feel really good to know that what I was doing might help save the lives of other kids.

I want to run with my mom again this year for #teamEBRP to raise more for research so that my friends with EB and other people who have EB will have hope for a better life.  I hope that you will support me and help me make a difference.

THANK YOU!

 

 

EB Research Partnership wrote -

EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

https://www.youtube.com/watch?v=qz0QeSCWif4

http://www.thedoctorstv.com/videolib/init/10096

DONATE

To This Fundraiser

$2,185

MONEY RAISED
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  • Matt Griffiths

    $100

  • Karla

    $10

  • Casey Neikens

    $20

  • Gianna Davidson

    $20

  • Gramma Michele

    $100

  • The Butterfly Fund

    $100

  • Auntie Marcia

    $300

  • Christine & Frank DeMars

    $25

  • Pam Pundsack

    $100

  • Debbie Miller

    $25

  • Lyndol and Susan Dew

    $200

  • Michele Gross

    $100

  • Deb Pallies

    $25

  • Freeport Electric

    $50

  • The Lehigh's from Michigan

    $200

  • Craig & Amanda Maus

    $25

  • A Zona

    $20

  • Leah's nana

    $25

  • Julie McHugh-Bromley

    $50

  • Sara Van Beck

    $25

  • Kinkle Family

     

  • c smith

     

  • Kaija Kiser

     

  • ANN AND JAMES HOEY

    $25

  • Anonymous

    $20

  • David & Judy Dix

    $25

  • Annie Leah and Claude McMorris

    $50

  • Anonymous

    $50

  • Grandma Gilbert

    $100

  • The Harren Family

    $20

  • Pat Murphy & Mary Opatrny

    $25

  • Ruth & Sean Sullivan

    $20

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437% Raised of $500 Goal

Fundraise for this Campaign

The Team: $28,158 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Todd Setsma

Amount Raised

$4,375

 

88% Raised of $5,000 Goal

Fundraiser Title

Meredith and Jennifer Ruhl

Amount Raised

$4,340

 

109% Raised of $4,000 Goal

Fundraiser Title

Jennifer Nick

Amount Raised

$4,000

Fundraiser Title

Tashia Uken

Amount Raised

$2,325

 

155% Raised of $1,500 Goal

Fundraiser Title

Ethan Zink

Amount Raised

$2,185

 

437% Raised of $500 Goal

Fundraiser Title

SooAnn Pisano

Amount Raised

$1,717

 

172% Raised of $1,000 Goal

Fundraiser Title

Emily McMahon

Amount Raised

$1,600

 

320% Raised of $500 Goal

Fundraiser Title

Ryan Fullmer

Amount Raised

$1,400

Donor Comments

Ruth & Sean Sullivan

Ruth & Sean Sullivan

DONATION: $20

Great artwork on the postcard sent 2 years ago

Pat Murphy & Mary Opatrny

Pat Murphy & Mary Opatrny

DONATION: $25

2 years ago

The Harren Family

The Harren Family

DONATION: $20

2 years ago

Grandma Gilbert

Grandma Gilbert

DONATION: $100

2 years ago

Anonymous

ANONYMOUS

DONATION: $50

2 years ago

Annie Leah and Claude McMorris

Annie Leah and Claude McMorris

DONATION: $50

2 years ago

David & Judy Dix

David & Judy Dix

DONATION: $25

In memory and honor of all EB Butterflies and their families. 2 years ago

Anonymous

ANONYMOUS

DONATION: $20

2 years ago

ANN AND JAMES HOEY

ANN AND JAMES HOEY

DONATION: $25

2 years ago

Kaija Kiser

Kaija Kiser

In memory of Abigail, Cole and others who have gone to heaven before us! Good luck with the marathon, Kiira's grandmother 2 years ago