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Kerri Spinazola's Fundraiser:

2015 Medtronic Twin Cities Marathon

Kerri's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT DATE: Oct 04, 2015

Kerri Spinazola

THE STORY:

Our beautiful daughter Melina was born in January, 2010 with EB Simplex.

She is the STRONGEST person I know - and inspires us every day!  She is a happy, funny, caring and GORGEOUS little girl.

Melina has a mild form of EB Simplex (her blisters are not widespread or internal) with serious wounds on different parts of her body. She blisters mostly on her feet, toes and ankles, and occasionally on her hands, face, elbows, knees, bottom, mouth and tongue. As part of wound care, we lance her blisters with a sterile needle and apply pressure to remove the fluid within the blister. This is an awful process for her, and for us!  We must constantly take measures to prevent bacteria from colonizing in her wounds to prevent infections.

In spite of the pain and frustration of EB, she remains a happy and well adjusted little girl!  She dances, sings, runs (some days) and plays like most children her age. EB is part of her, but it does not define her!

There is NO CURE FOR EB.

There is only prevention of blisters and daily wound care.

We want to help raise money for this important cause, we want to find a cure.

Please join us in our fight to find a cure!

AWARENESS - FUNDING - RESEARCH - CURE!

Thank you for your support!
 

EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

http://www.thedoctorstv.com/videolib/init/10096

DONATE

To This Fundraiser

$1,315

MONEY RAISED
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  • King's Subs, Andover, MA

     

  • We love you Melina!! CURE EB ~ Believe!! Kings Subs, Andover, MA

    $65

  • Jason Scharff

    $20

  • The Bretons

    $25

  • Kurt, Erin and Technology Seed

    $25

  • Jackson and Anderson

    $20

  • Scott and Deana Boucher

     

  • Lily Friend

     

  • Cafiso Family

    $50

  • Leah Zaheer

    $25

  • Sophia Hughes

     

  • Brooke Zaneski

     

  • Bob & Pat Roberts

     

  • Jacque & Connie Hamann

     

  • The Legers

    $25

  • Auntie Donna & Uncle Arnie

     

  • Burnett Family

    $50

  • Sage & Kaden Ulery

    $25

  • Tsetsilas Fam

    $50

  • Pierre, Christine and Gabriel Thelusma

    $25

  • The Sweeney Family

     

  • Alexa

    $20

  • Batson Family

    $25

  • The Panzini Family

    $50

  • Jane Manning

     

  • Laurel & Brooke Wright

     

  • The Tarpy Family

     

  • The DiBella Family

     

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132% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $28,158 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Todd Setsma

Amount Raised

$4,375

 

88% Raised of $5,000 Goal

Fundraiser Title

Meredith and Jennifer Ruhl

Amount Raised

$4,340

 

109% Raised of $4,000 Goal

Fundraiser Title

Jennifer Nick

Amount Raised

$4,000

Fundraiser Title

Tashia Uken

Amount Raised

$2,325

 

155% Raised of $1,500 Goal

Fundraiser Title

Ethan Zink

Amount Raised

$2,185

 

437% Raised of $500 Goal

Fundraiser Title

SooAnn Pisano

Amount Raised

$1,717

 

172% Raised of $1,000 Goal

Fundraiser Title

Emily McMahon

Amount Raised

$1,600

 

320% Raised of $500 Goal

Fundraiser Title

Ryan Fullmer

Amount Raised

$1,400

Donor Comments

The DiBella Family

The DiBella Family

You go, girls!!! 2 years ago

The Tarpy Family

The Tarpy Family

Godspeed Melina! Know always that you are loved.... 2 years ago

Laurel & Brooke Wright

Laurel & Brooke Wright

2 years ago

Jane Manning

Jane Manning

2 years ago

The Panzini Family

The Panzini Family

DONATION: $50

We love Melina's beautiful smile! 2 years ago

Batson Family

Batson Family

DONATION: $25

2 years ago

Alexa

Alexa

DONATION: $20

2 years ago

The Sweeney Family

The Sweeney Family

we love you guys! Melina you are such a special little girl! 2 years ago

Pierre, Christine and Gabriel Thelusma

Pierre, Christine and Gabriel Thelusma

DONATION: $25

2 years ago

Tsetsilas Fam

Tsetsilas Fam

DONATION: $50

2 years ago