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Meredith and Jennifer Ruhl's Fundraiser:

2015 Medtronic Twin Cities Marathon

Meredith and Jennifer's Photo
 

Meredith and Jennifer Ruhl via Crowdrise
August 18, 2015

To those who would prefer to donate off line, please make your check out to EBRP and note that it is in support of our team.  See more

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT DATE: Oct 04, 2015

Meredith and Jennifer Ruhl

THE STORY:

We are thrilled to be a part of Team EBRP! We are walking and running in honor of Raul, who is Meredith's nephew and Jennifer's grandson, and all others living with EB. Raul is a curious, funny, talkative, firetruck-loving 5-year-old boy from Romania who has joined our family and won our hearts. Raul lives with Severe Recessive Dystrophic EB and is awaiting a bone marrow transplant in MN. Please visit his blog, romanianbutterfly.com, to learn more about Raul, his journey to the United States, and his courage in living with EB. And, please consider contributing to our fundraising efforts in support of the EB Research Partnership, an organization dedicated to treating and ultimately curing EB! 

In October, we will both be participating in a 5k and Meredith will also be running in a 10 mile race (part of the Twin Cities Marathon weekend) to raise money for this cause that means a great deal to our family.

ABOUT EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

https://www.youtube.com/watch?v=qz0QeSCWif4

http://www.thedoctorstv.com/videolib/init/10096

DONATE

To This Fundraiser

$4,340

MONEY RAISED
  •  
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  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Meredith and Patrick

     

  • Anonymous

    $25

  • Anonymous

    $15

  • Friend of Raul!!

    $75

  • Hapa

    $200

  • Erica and Edie

    $100

  • Sidney

    $100

  • Anonymous

    $50

  • Anonymous

    $250

  • Geoff

    $150

  • Grandma

    $300

  • A friend of Raul

    $100

  • Karen Conway

    $100

  • Johnny

     

  • Marion Sillima

    $1,000

  • Gramps

    $100

  • Andy

    $100

  • Elizabeth

     

  • Charlie and Melissa Ruhl

    $100

  • Anonymous

    $100

  • Rick and Susan Hill

    $200

  • Bob the Builder!

    $500

  • Susan Hill

    $200

  • Susan Ruhl

    $400

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  •  
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109% Raised of $4,000 Goal

Fundraise for this Campaign

The Team: $28,158 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Todd Setsma

Amount Raised

$4,375

 

88% Raised of $5,000 Goal

Fundraiser Title

Meredith and Jennifer Ruhl

Amount Raised

$4,340

 

109% Raised of $4,000 Goal

Fundraiser Title

Jennifer Nick

Amount Raised

$4,000

Fundraiser Title

Tashia Uken

Amount Raised

$2,325

 

155% Raised of $1,500 Goal

Fundraiser Title

Ethan Zink

Amount Raised

$2,185

 

437% Raised of $500 Goal

Fundraiser Title

SooAnn Pisano

Amount Raised

$1,717

 

172% Raised of $1,000 Goal

Fundraiser Title

Emily McMahon

Amount Raised

$1,600

 

320% Raised of $500 Goal

Fundraiser Title

Ryan Fullmer

Amount Raised

$1,400

Donor Comments

Susan Hill

Susan Hill

DONATION: $200

2 years ago

Susan Ruhl

Susan Ruhl

DONATION: $400

2 years ago

Bob the Builder!

Bob the Builder!

DONATION: $500

2 years ago

Rick and Susan Hill

Rick and Susan Hill

DONATION: $200

Wishing the best for Raul. Good luck, Jennifer and Meredith! 2 years ago

Anonymous

ANONYMOUS

DONATION: $100

2 years ago

Charlie and Melissa Ruhl

Charlie and Melissa Ruhl

DONATION: $100

2 years ago

Elizabeth

Elizabeth

Good luck Meredith and Aunt Jennifer!! 2 years ago

Andy

Andy

DONATION: $100

2 years ago

Gramps

Gramps

DONATION: $100

2 years ago

Marion Sillima

Marion Sillima

DONATION: $1,000

2 years ago