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Susie Kaufman's Fundraiser:

2015 Medtronic Twin Cities Marathon

Susie's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT DATE: Oct 04, 2015

Susie Kaufman

THE STORY:

Dear Friends,

No, I'm not running a Marathon- just a 5K. And by October, I can assume I will be walking it! But I'm so excited to participate in this race and fundraiser (in my new city!) for a very special cause, the EB Research Partnership.

EBRP is a non-profit organization that is dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

My friend Jamie Silver and her husband Alex have been fighting hard for this cause each day since their son Jackson was born with EB. 

I'm excited and honored to be a part of the EBRP team at the Twin Cities Marathon weekend. I hope you'll support me as I raise money to help EBRP fund research projects for a treatments and a cure, both of which are within reach according to leading researchers. 

You can learn more about EBRP by following the links below. 

Thanks for your support!

Susie

http://ebresearch.org/

https://www.youtube.com/watch?v=qz0QeSCWif4

http://www.thedoctorstv.com/videolib/init/10096

DONATE

To This Fundraiser

$447

MONEY RAISED
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  • Pete Freeman

    $50

  • Carol and Arthur Freeman

    $50

  • Alan & Remy Freeman

    $50

  • Gabe Kaufman

    $50

  • Sara, Danny, and Eli

    $25

  • Juliet Ross

    $72

  • Annie

    $50

  • Megan Vaselewski c/o the Ayco Charitable Foundation

    $100

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224% Raised of $200 Goal

Fundraise for this Campaign

The Team: $28,158 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Todd Setsma

Amount Raised

$4,375

 

88% Raised of $5,000 Goal

Fundraiser Title

Meredith and Jennifer Ruhl

Amount Raised

$4,340

 

109% Raised of $4,000 Goal

Fundraiser Title

Jennifer Nick

Amount Raised

$4,000

Fundraiser Title

Tashia Uken

Amount Raised

$2,325

 

155% Raised of $1,500 Goal

Fundraiser Title

Ethan Zink

Amount Raised

$2,185

 

437% Raised of $500 Goal

Fundraiser Title

SooAnn Pisano

Amount Raised

$1,717

 

172% Raised of $1,000 Goal

Fundraiser Title

Emily McMahon

Amount Raised

$1,600

 

320% Raised of $500 Goal

Fundraiser Title

Ryan Fullmer

Amount Raised

$1,400

Donor Comments

Megan Vaselewski c/o the Ayco Charitable Foundation

Megan Vaselewski c/o the Ayco Charitable Foundation

DONATION: $100

2 years ago

Annie

Annie

DONATION: $50

2 years ago

Juliet Ross

Juliet Ross

DONATION: $72

Tribute to Jackson and Rafi! 2 years ago

Sara, Danny, and Eli

Sara, Danny, and Eli

DONATION: $25

For a great cause 2 years ago

Gabe Kaufman

Gabe Kaufman

DONATION: $50

2 years ago

Alan & Remy Freeman

Alan & Remy Freeman

DONATION: $50

2 years ago

Carol and Arthur Freeman

Carol and Arthur Freeman

DONATION: $50

2 years ago

Pete Freeman

Pete Freeman

DONATION: $50

2 years ago