I am running a 10 mile race on Octoer 4th. All money raised by me and my team with go to a cause that is obviously near and dear to me. I am running to raise money for research for EB which our 2 sons Anthony and James passed away from. Please help me reach my goal of $1500 for EB research. If you prefer to donate by check please make it out to EB Research Partnership and you can mail it to me and I will send it to EBRP.
EB RESEARCH PARTNERSHIP
We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.
We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.
Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
Partner with us in our mission to further life-saving research.