BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
EVENT DATE: Feb 19, 2016
I'm no marathon runner,or short distance runner,or any form of runner... but I decided to participate in my second 5K this February. If I'm not a runner why am I running?
I am running for all who suffer from Epidermolysis Bullosa ("EB"). Most of all I am running for someone who is very important to me,my nephew John Hudson Dilgen. John has an infectious smile and manages to always stay upbeat no matter what life throws at him. He is a rockstar and my hero. Please donate and help me reach my goal.
EB Research Partnership wrote -
EB RESEARCH PARTNERSHIP
We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.
We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.
Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
Partner with us in our mission to further life-saving research.