Skip to content
erikjohnson2's profile image - click for profile

Erik Johnson's Fundraiser:

2016 Disney's Princess Weekend

Erik's Photo
Erik's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2016 Disney Princess Half Marathon

EVENT DATE: Feb 19, 2016

Erik Johnson

THE STORY:

I'm no  marathon runner,or short distance runner,or any form of runner... but I decided to  participate  in my second 5K this February. If I'm not a runner why am I running?

 I am running for all who  suffer from Epidermolysis Bullosa ("EB"). Most of all I am running for someone  who is  very important to me,my nephew John Hudson Dilgen. John has an infectious smile and manages to always stay upbeat no matter what life throws at him. He is a rockstar and my hero. Please donate and help me reach my goal.

EB Research Partnership wrote -

EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

https://www.youtube.com/watch?v=qz0QeSCWif4

http://www.thedoctorstv.com/videolib/init/10096

 

DONATE

To This Fundraiser

$510

MONEY RAISED
  • Friends of John Hudson

    $500

  • Don and Jean

    $10

  •  
  •  
  •  
 

102% Raised of $500 Goal

Fundraise for this Campaign

The Team: $25,052 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Karen Thorsen

Amount Raised

$3,596

Fundraiser Title

Lonette Simeone

Amount Raised

$3,530

 

353% Raised of $1,000 Goal

Fundraiser Title

Liz Morano

Amount Raised

$3,502

Fundraiser Title

Patty and Keith Bevacqui

Amount Raised

$1,990

Fundraiser Title

Faye Dilgen

Amount Raised

$1,728

Fundraiser Title

Sally Contreras

Amount Raised

$1,570

Fundraiser Title

MaryAnn Storm

Amount Raised

$1,145

Fundraiser Title

Kalilla Dilgen

Amount Raised

$1,135

Donor Comments

Don and Jean

Don and Jean

DONATION: $10

2 years ago

Friends of John Hudson

Friends of John Hudson

DONATION: $500

2 years ago