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Jessie Fishman's Fundraiser:

2016 Disney's Princess Weekend

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BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2016 Disney Princess Half Marathon

EVENT DATE: Feb 19, 2016

Jessie Fishman


EB Research Partnership wrote -


We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.


The Team: $25,052 TOTAL RAISED SO FAR

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Karen Thorsen

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Lonette Simeone

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353% Raised of $1,000 Goal

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Liz Morano

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Patty and Keith Bevacqui

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Faye Dilgen

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Sally Contreras

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MaryAnn Storm

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Kalilla Dilgen

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