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Lisa Byrnes' Fundraiser:

2016 Disney's Princess Weekend

Lisa's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2016 Disney Princess Half Marathon

EVENT DATE: Feb 19, 2016

Lisa Byrnes

THE STORY:

EB Research Partnership wrote -

EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

https://www.youtube.com/watch?v=qz0QeSCWif4

http://www.thedoctorstv.com/videolib/init/10096

 

DONATE

To This Fundraiser

$420

MONEY RAISED
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  • Laraine Abbadessa

    $25

  • Michele/Eileen SIDAC

    $50

  • Cathy molino

    $25

  • Sally Contreras

    $20

  • Vanessa Velasquez

    $15

  • Lisa Smith

    $15

  • Kelly Stissi

    $20

  • Justina Peckis Stissi

    $10

  • Gina Iadanza

    $40

  • Katie & Tommy Smith

    $50

  • Patty Bevacqui

    $50

  • Marina Kochneva

    $50

  • Lisa Cunningham

    $50

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Fundraise for this Campaign

The Team: $25,052 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Karen Thorsen

Amount Raised

$3,596

Fundraiser Title

Lonette Simeone

Amount Raised

$3,530

 

353% Raised of $1,000 Goal

Fundraiser Title

Liz Morano

Amount Raised

$3,502

Fundraiser Title

Patty and Keith Bevacqui

Amount Raised

$1,990

Fundraiser Title

Faye Dilgen

Amount Raised

$1,728

Fundraiser Title

Sally Contreras

Amount Raised

$1,570

Fundraiser Title

MaryAnn Storm

Amount Raised

$1,145

Fundraiser Title

Kalilla Dilgen

Amount Raised

$1,135

Donor Comments

Lisa Cunningham

Lisa Cunningham

DONATION: $50

2 years ago

Marina Kochneva

Marina Kochneva

DONATION: $50

2 years ago

Patty Bevacqui

Patty Bevacqui

DONATION: $50

Thank you for the great Tutus and on behalf of my son Antonio thank you for helping to raise money to find a cure for EB!!! 2 years ago

Katie & Tommy Smith

Katie & Tommy Smith

DONATION: $50

Thanks for supporting our nephew, John Hudson, and EBRP!! 2 years ago

Gina Iadanza

Gina Iadanza

DONATION: $40

2 years ago

Justina Peckis Stissi

Justina Peckis Stissi

DONATION: $10

2 years ago

Kelly Stissi

Kelly Stissi

DONATION: $20

2 years ago

Lisa Smith

Lisa Smith

DONATION: $15

Thank you! 2 years ago

Vanessa Velasquez

Vanessa Velasquez

DONATION: $15

2 years ago

Sally Contreras

Sally Contreras

DONATION: $20

2 years ago