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MaryAnn Storm's Fundraiser:

2016 Disney's Princess Weekend

MaryAnn's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2016 Disney Princess Half Marathon

EVENT DATE: Feb 19, 2016

MaryAnn Storm

THE STORY:

EB Research Partnership wrote -

EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

https://www.youtube.com/watch?v=qz0QeSCWif4

http://www.thedoctorstv.com/videolib/init/10096

 

DONATE

To This Fundraiser

$1,145

MONEY RAISED
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  • Donna Dwyer Pitz

    $100

  • Charlie Storm Smith

    $100

  • Lisa Spenia

    $100

  • Bob and Deb Dishon

    $100

  • Jim & Carol Scherer

     

  • Mary Lou Bondel

    $100

  • Becca Beaman

     

  • Kimbelly

    $25

  • Chris and Betsie Monico

    $50

  • Mary Ellen Carter

    $100

  • Ponce and Regina Tidwell

    $100

  • Rhonda R

    $100

  • Steph and Jim

    $50

  • Kiefer Family

     

  • Ardie Hinds

    $50

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Fundraise for this Campaign

The Team: $25,052 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Karen Thorsen

Amount Raised

$3,596

Fundraiser Title

Lonette Simeone

Amount Raised

$3,530

 

353% Raised of $1,000 Goal

Fundraiser Title

Liz Morano

Amount Raised

$3,502

Fundraiser Title

Patty and Keith Bevacqui

Amount Raised

$1,990

Fundraiser Title

Faye Dilgen

Amount Raised

$1,728

Fundraiser Title

Sally Contreras

Amount Raised

$1,570

Fundraiser Title

MaryAnn Storm

Amount Raised

$1,145

Fundraiser Title

Kalilla Dilgen

Amount Raised

$1,135

Donor Comments

Ardie Hinds

Ardie Hinds

DONATION: $50

go Mary, Hugs for Charlie!! 1 year ago

Kiefer Family

Kiefer Family

In Honor of Charlie 1 year ago

Steph and Jim

Steph and Jim

DONATION: $50

For Charlie - Run fast Mama Storm! 1 year ago

Rhonda R

Rhonda R

DONATION: $100

Mr. Charlie Man 2 years ago

Ponce and Regina Tidwell

Ponce and Regina Tidwell

DONATION: $100

2 years ago

Mary Ellen Carter

Mary Ellen Carter

DONATION: $100

2 years ago

Chris and Betsie Monico

Chris and Betsie Monico

DONATION: $50

2 years ago

Kimbelly

Kimbelly

DONATION: $25

2 years ago

Becca Beaman

Becca Beaman

Charlie! Charlie! Charlie! 2 years ago

Mary Lou Bondel

Mary Lou Bondel

DONATION: $100

2 years ago