Skip to content
brianmurphy6's profile image - click for profile

Brian Murphy's Fundraiser:

2015 NY Marathon

Brian's Photo
Brian's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2015 TCS New York City Marathon

EVENT DATE: Nov 01, 2015

Brian Murphy

THE STORY:

Dear Family and Friends,

On November 1, 2015, I'll be running the New York City Marathon in honor of Robert Twible.  Robbie is my cousin Kathleen's son, and he suffers from epidermolyis bullosa (EB), a rare disease that causes severe blistering both internally and externally from the slightest friction, rubbing, or other contact.  Since last year, Robbie has had three surgeries to open his esophagus and clear the blistering.  Walking has become difficult for him, and the everyday things that we take for granted are major ordeals.

Through all the pain, bandaging, doctors visits and surgeries, Robbie somehow maintains an incredibly positive attitute.  He is an inspiration to everyone that meets him.  He's always quick with a smile, and he's a huge fan of Broadway, Justin Timberlake, and Ellen, to name just a few of his interests.  It is this inspiration that will get me through the marathon this fall.

I'm privileged to be running with the EB Research Partnership team.  Kathy and I have been doing our weekend long runs together, and we're up to 14 miles and right on track with our plan.

Please support me in my efforts to find a cure for EB.  Your donation will help continue the research that will hopefully lead to a cure for this horrible disease.

$2,825

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Brian & Jeanne Murphy

    $250

  • Tennessee Murphy's

    $150

  • Keena Family

    $25

  • Brian & Jeanne DeMasters

    $50

  • Shelmet LLC

    $500

  • CA

    $100

  • Stroehlein family

    $100

  • Chas & Sally Heritage

    $50

  • Ron and Shirley Phillips

     

  • Francesca johnson

     

  • Sadler Family

    $100

  • Kelly and Greg Bryant

    $50

  • Murphy's in Virginia

    $250

  • Leavy Family for Katie Donohoe & Robbie Twibble

    $25

  • Frank & Grace Morris

    $100

  • Grace Murphy

    $50

  • Patrick Murphy

    $20

  • Kate Murphy

    $20

  • Carol Hynes (Robbie's Nana)

    $100

  • The Verbouwens Family

     

  • Pat & Tony Fleck

    $150

  • Joe, Susanne, Willie, Christopher & Katherine

    $100

  • Tom Dean

    $100

  • The Jambors

    $25

  • McCarthy Family

    $50

  • Anonymous

     

  • Nat and Joe

    $100

  • Josh Weiss

    $50

  • Anderson Family

    $50

  • Avery Woods

    $25

  • Eve Morris

    $25

  • Steve & Jenine Cottone

    $25

  •  
  •  
  •  
 

113% Raised of $2,500 Goal

The Team: $63,353 TOTAL RAISED SO FAR

Fundraiser Title

Kathleen Twible

Amount Raised

$12,304

Fundraiser Title

Annie Langschultz

Amount Raised

$6,750

 

135% Raised of $5,000 Goal

Fundraiser Title

Cortney Cooper

Amount Raised

$3,886

Fundraiser Title

Alexander Silver

Amount Raised

$3,575

Fundraiser Title

Rachael Foster-Yellen

Amount Raised

$3,310

 

132% Raised of $2,500 Goal

Fundraiser Title

Cathy Molino

Amount Raised

$3,223

Fundraiser Title

Jenny Horne

Amount Raised

$3,046

 

122% Raised of $2,500 Goal

Fundraiser Title

Kate Zelles

Amount Raised

$2,937

Donor Comments

Steve & Jenine Cottone

Steve & Jenine Cottone

DONATION: $25

2 years ago

Eve Morris

Eve Morris

DONATION: $25

2 years ago

Avery Woods

Avery Woods

DONATION: $25

Congratulations on your success! 2 years ago

Anderson Family

Anderson Family

DONATION: $50

Best of luck! 2 years ago

Josh Weiss

Josh Weiss

DONATION: $50

2 years ago

Nat and Joe

Nat and Joe

DONATION: $100

2 years ago

Anonymous

ANONYMOUS

2 years ago

McCarthy Family

McCarthy Family

DONATION: $50

2 years ago

The Jambors

The Jambors

DONATION: $25

Good Luck Brian 2 years ago

Tom Dean

Tom Dean

DONATION: $100

2 years ago