Skip to content
courtneythomas1's profile image - click for profile

Courtney Thomas' Fundraiser:

2015 NY Marathon

Courtney's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2015 TCS New York City Marathon

EVENT DATE: Nov 01, 2015

Courtney Thomas

THE STORY:

Early this year I made my new year's resolution to compete in an event each month.  I have enjoyed participating in every race every, benefitting a variety of different causes.  Then a friend posted a heartbreaking and inspiring video on facebook of a young boy suffering with terrible skin disorder, Epidermolysis Belosa.  What many of you don't know is that my husband has the symplex version of this disorder.  A protein missing in his DNA means the skin layers in his hands and feet are fragile, like the wings of a butterfly.  Any heat or friction causes pain and blisters.......thus his LOVE for the water!  This affects our daily lives in ways people do not see.  If it is hot out, things as simple as walking our dogs a few blocks to the coffee shop in the morning are not possible without returning home to pain and blisters that last for days. This disorder is genetic and is passed down through the family.  Mark's sister and father also have EB. While those with the simplex version live complete lives, the distrophic version, which affects all surfaces of the body result shortened life expectancy

 

EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

http://www.thedoctorstv.com/videolib/init/1009

$2,500

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Martin J Munroe

    $25

  • Colleen

     

  • Angela Kalmerton

    $20

  • Grandma

     

  • Jim and Susan Dohl & family

     

  • Team Thomas

    $1,000

  • The Dixon Family

     

  • Brynn and Ina

     

  • mom and dad Smurlo

    $250

  • Missy & Kevin

     

  • Anonymous

    $500

  •  
  •  
  •  
 

100% Raised of $2,500 Goal

The Team: $63,353 TOTAL RAISED SO FAR

Fundraiser Title

Kathleen Twible

Amount Raised

$12,304

Fundraiser Title

Annie Langschultz

Amount Raised

$6,750

 

135% Raised of $5,000 Goal

Fundraiser Title

Cortney Cooper

Amount Raised

$3,886

Fundraiser Title

Alexander Silver

Amount Raised

$3,575

Fundraiser Title

Rachael Foster-Yellen

Amount Raised

$3,310

 

132% Raised of $2,500 Goal

Fundraiser Title

Cathy Molino

Amount Raised

$3,223

Fundraiser Title

Jenny Horne

Amount Raised

$3,046

 

122% Raised of $2,500 Goal

Fundraiser Title

Kate Zelles

Amount Raised

$2,937

Donor Comments

Anonymous

ANONYMOUS

DONATION: $500

For Peanut 2 years ago

Missy & Kevin

Missy & Kevin

2 years ago

mom  and dad Smurlo

mom and dad Smurlo

DONATION: $250

2 years ago

Brynn and Ina

Brynn and Ina

Great Cause! 2 years ago

The Dixon Family

The Dixon Family

in honor of Jackson Silver. have a great race! 2 years ago

Team Thomas

Team Thomas

DONATION: $1,000

2 years ago

Jim and Susan Dohl & family

Jim and Susan Dohl & family

Good luck love you 2 years ago

Grandma

Grandma

I wish I were running with you. 2 years ago

Angela Kalmerton

Angela Kalmerton

DONATION: $20

2 years ago

Colleen

Colleen

Wonderful gift for a wonderful person for a wonderful cause. 2 years ago