
BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
EVENT: 2015 TCS New York City Marathon
EVENT DATE: Nov 01, 2015
THE STORY:
EB RESEARCH PARTNERSHIP
We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.
We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.
Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
Partner with us in our mission to further life-saving research.
http://ebresearch.org/
The Team: $63,353 TOTAL RAISED SO FAR
Donor Comments
Karlene Johnson
DONATION: $100
Always proud of you. This is just another example of your amazing thoughtfulness. XOXO 3 years ago