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Nancy Casey's Fundraiser:

2015 NY Marathon

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BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2015 TCS New York City Marathon

EVENT DATE: Nov 01, 2015

Nancy Casey

THE STORY:

Hello to all,

On November 1, 2015 I will be joining thousands of runners at the start of the NYC Marathon.  As challenging as a marathon is, it is nothing compared to the challenges that children face as they live with a medical diagnosis of EB.  EB is a very rare skin condition affecting children that requires daily pain management, daily baths, and dressing changes to help keep their skin free of infection and blisters.  One with EB has extremely fragile skin whereby just a small amount of skin friction can cause an open sore or blister to form.

As a young girl living on Staten Island I was diagnosed with a chronic skin condition that made me a very self conscious individual.  I thought it was the worst thing in the world, until as a new nurse I was randomly assigned to work on the dermatology unit at NYU Medical Center.  I quickly learned that I was very lucky compared to those suffering with EB.  I had no idea that skin conditions could be so severe. My heart ached as I helped many patients endure painful baths and dressing changes, while at the same time I was in awe of the strength and courage of these individuals.

I am looking forward to the challenge of running the marathon, but I am so excited to be working with such a great group of people to raise money for such a needed cause.  EB is working towards a cure, but we need your help.  Any amount will bring them closer to a cure!  Thanks for your support.  I will be thinking of each of you along this upcoming journey and on race day itself!  Thank you!!

 

EB Research Partnership wrote -

EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

http://www.thedoctorstv.com/videolib/init/1009

$2,500

MONEY RAISED
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  • Tim Casey

    $100

  • Elaine Sipos

    $10

  • Mike and Jen Pirot

    $50

  • Wendy Carter

    $50

  • DeLucia Family

    $50

  • Suseck Family

    $50

  • The Becker Family

    $75

  • Jennifer Wilke

    $50

  • Ely Family

    $50

  • The Jeney Family

    $50

  • Anonymous

    $200

  • Jim Beattie

    $50

  • Meg Livak

    $50

  • Carol and Tom Ruffer

    $100

  • Dan and Andreina Casey

    $100

  • Rick and Mary-Ellen Falcinelli

    $100

  • Tom & Sharon Haggerty

    $100

  • PIrot Family

    $50

  • Laura Bovitz

    $50

  • Neydon Family

    $50

  • The Zuccarello Family

    $50

  • Anonymous

     

  • Cindy Norfleet

    $100

  • Marianne & Chris Gradone

    $50

  • The Fari Family

    $50

  • Jim and Betty Casey

    $50

  • Sue and Jamie Biancamano

    $50

  • Celina and Steve Pellicane

    $100

  • Mickey haggerty

     

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100% Raised of $2,500 Goal

The Team: $63,353 TOTAL RAISED SO FAR

Fundraiser Title

Kathleen Twible

Amount Raised

$12,304

Fundraiser Title

Annie Langschultz

Amount Raised

$6,750

 

135% Raised of $5,000 Goal

Fundraiser Title

Cortney Cooper

Amount Raised

$3,886

Fundraiser Title

Alexander Silver

Amount Raised

$3,575

Fundraiser Title

Rachael Foster-Yellen

Amount Raised

$3,310

 

132% Raised of $2,500 Goal

Fundraiser Title

Cathy Molino

Amount Raised

$3,223

Fundraiser Title

Jenny Horne

Amount Raised

$3,046

 

122% Raised of $2,500 Goal

Fundraiser Title

Kate Zelles

Amount Raised

$2,937

Donor Comments

Mickey haggerty

Mickey haggerty

2 years ago

Celina and Steve Pellicane

Celina and Steve Pellicane

DONATION: $100

Good luck 2 years ago

Sue and Jamie Biancamano

Sue and Jamie Biancamano

DONATION: $50

2 years ago

Jim and Betty Casey

Jim and Betty Casey

DONATION: $50

Good luck - stay safe. 2 years ago

The Fari Family

The Fari Family

DONATION: $50

Good Luck Nancy! 2 years ago

Marianne & Chris Gradone

Marianne & Chris Gradone

DONATION: $50

2 years ago

Cindy Norfleet

Cindy Norfleet

DONATION: $100

2 years ago

Anonymous

ANONYMOUS

2 years ago

The Zuccarello Family

The Zuccarello Family

DONATION: $50

2 years ago

Neydon Family

Neydon Family

DONATION: $50

2 years ago