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Rachael Foster-Yellen's Fundraiser:

2015 NY Marathon

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Rachael's Photo
Rachael's Photo
 

Rachael Foster-Yellen via Crowdrise
May 01, 2015

Thank you to my amazing neighbors, the Dilorio family for you very generous donation !!! Xoxo  See more

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2015 TCS New York City Marathon

EVENT DATE: Nov 01, 2015

Rachael Foster-Yellen

THE STORY:

Dear Friends and Family,

On November 1st, I will be running the 2015 TCS New York City Marathon to support the EB Research Partnership (EBRP), a nonprofit organization that is close to my heart.  Someone I love very much, John Hudson Dilgen, is battling this disease.  John is one of the most amazing kids you will ever meet. His smile is contagious and  I am in awe of his courage and strength everyday. Just Click on the video and see for yourself . 

For John and all of the children fighting EB, even the slightest touch or friction can cause blisters and wounds all over the body--inside and out! The pain is something no one, especially children, should have to bare. 

What is EB?

Epidermolysis Bullosa, or EB, is a very rare genetic connective tissue disorder that affects 1 child out of every 20,000 births (that means about 200 children a year are born with EB).  EB is actually a group of disorders that share a prominent manifestation of extremely fragile skin that blisters and tears from friction or trauma. Internal organs and bodily systems can also be seriously affected by EB.  The list of secondary complications  can be long and may require multiple interventions from a range of medical specialists.  As of today, there is no cure or treatment.  Daily wound care, pain management and protective bandaging are the only options available. -

Curing a rare disease is always a race against the clock. But curing EB is a race against a clock moving at warp speed.  Children with severe forms of EB have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his or her shortened life. 

 

There is tremendously encouraging work underway, and a cure for EB is within reach. The EB Research Partnership is aggressively funding research.  In the past 4 years, EBRP has raised over $4 million for disease research and is helping to fund the promising work taking place at leading institutions such as Stanford, the University of Minnesota and the University of Colorado.  Visit www.ebresearch.org to learn more about this organization.  

 

I am honored to be a part of Team EBRP in the 2015 TCS New York City Marathon.  Please consider making a donation to help me reach my fundraising goal of $2,500.  Every dollar brings us a step closer to finding a cure for this horrible disease.  You can support me and Team EBRP by going

 https://www.crowdrise.com/ebr-nymarathon/fundraiser/rachaelfosteryellen

or by sending a check made payable to the “EB Research Partnership” (be sure to include my name in the memo line) to:

 

EB Research Partnership

132 East 43rd Street, Suite 432

New York, NY 10017

Thank you so much for supporting me! 

 

 See more at:      https://youtu.be/p2LHqHzBepQ

http://www.debra.org/whatiseb#sthash.nidiIWM3.dpufhttp://ebresearch.org/

 

$3,310

MONEY RAISED
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  • Dean Dean Yellen Jr.

    $20

  • The Rufolos

    $50

  • Michelle Lombardo

    $20

  • The Lovato Family

    $25

  • Anonymous

    $100

  • Karen Contant

    $20

  • Anonymous

    $50

  • anonymous

    $50

  • The Mohwinkel's

    $50

  • Kevin B. Fitzharris

    $60

  • Varona Family

    $75

  • Mary Ann Fitzharris (Fitz's mom)

    $25

  • Victor Cruz & Family

    $50

  • The Appelbaum Family

    $100

  • Lucas Fuentes

    $25

  • Jennifer Zinamon

    $20

  • Josephine Viglione

    $25

  • Meirinho Family

    $150

  • Geller Family

    $50

  • The Clemente Family

    $50

  • Adam "the best nephew" Grabowski

    $20

  • ME Cook

    $25

  • D & D

    $50

  • Anthony Pozzolano

    $100

  • Charles, Connie & Joseph Carbone

    $50

  • Nicole Daragjati

    $40

  • Susan Volpe

    $30

  • Marie Sidoti

    $40

  • The Watson's

    $100

  • The Auletti Family

    $50

  • Chantal/Nile

    $50

  • Kenneth Fung

    $50

  • The Balke's

    $50

  • The Ferro Family

    $40

  • The Suter Family

    $50

  • Awai

    $40

  • Michelle & Kurtis

    $50

  • Nancy Yorke

    $25

  • Liz & Victor Cruz

    $50

  • Lisa and Ivan Simonetti

    $50

  • The Bretz family

    $40

  • Alli and Peter

    $200

  • Gina (Leann and Adam's friend)

    $35

  • Leann

    $50

  • Ute Wojtkowski

    $20

  • Colten Rufolo

    $25

  • Jared Rufolo

    $25

  • Glorisi Family

    $50

  • DiGraci Family

    $80

  • Cubanu Restaurant

    $500

  • Margarita Torres

     

  • Karen H.

    $10

  • Vivian

    $40

  • Nativo

     

  • Anonymous

     

  • Ramirez

    $25

  • Evelin G

    $20

  • The Costa Family

    $100

  • Anita Nair

    $25

  • Keith Poonwah

    $25

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132% Raised of $2,500 Goal

The Team: $63,353 TOTAL RAISED SO FAR

Fundraiser Title

Kathleen Twible

Amount Raised

$12,304

Fundraiser Title

Annie Langschultz

Amount Raised

$6,750

 

135% Raised of $5,000 Goal

Fundraiser Title

Cortney Cooper

Amount Raised

$3,886

Fundraiser Title

Alexander Silver

Amount Raised

$3,575

Fundraiser Title

Rachael Foster-Yellen

Amount Raised

$3,310

 

132% Raised of $2,500 Goal

Fundraiser Title

Cathy Molino

Amount Raised

$3,223

Fundraiser Title

Jenny Horne

Amount Raised

$3,046

 

122% Raised of $2,500 Goal

Fundraiser Title

Kate Zelles

Amount Raised

$2,937

Donor Comments

Keith Poonwah

Keith Poonwah

DONATION: $25

Good luck on run 3 years ago

Anita Nair

Anita Nair

DONATION: $25

I sincerely hope that there will be a complete cure for EB one day !! Good luck Rachael 3 years ago

The Costa Family

The Costa Family

DONATION: $100

Kick some but on Sunday!!! Great cause.!!! 3 years ago

Evelin G

Evelin G

DONATION: $20

3 years ago

Ramirez

Ramirez

DONATION: $25

3 years ago

Anonymous

ANONYMOUS

Wishing you the very best on your run for this wonderful cause! XO 3 years ago

Nativo

Nativo

something little to show our support - you got this ❤️ 3 years ago

Vivian

Vivian

DONATION: $40

3 years ago

Karen H.

Karen H.

DONATION: $10

Yani's friend. 3 years ago

Margarita Torres

Margarita Torres

Yani's friend 3 years ago