BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
EVENT DATE: Nov 01, 2015
I would like to make a special announcement. I will be running the 2015 NYC Marathon! I need your help. No, it isn't running behind me holding up a speaker blasting "Eye of the tiger" (well…actually now that I think about it…). I have pledged to raise $2,500 to support research for EB (Epidermolysis bullosa), which is a rare disease that affects the family of a friend and co-worker.
Why am I excited about running 26.2 miles?
Throughout my life, I was never athletic and was definitely not healthy. Inspired by my wife, I decided to make a big change 3 years ago and made running a part of my lifestyle. Over time, I started doing races of longer and longer distances, and realized that this is something I’m actually good at. Me! Of all people!
Running the NYC Marathon has been my goal for a few years, and will be a significant achievement in my life. I can't express how excited I am to not only reach this seemingly unattainable goal, but I get to help some amazing people along the way. By donating, you are not only supporting me, but you are also helping the families affected by this disease. Anything you can give would be helpful.
READ BELOW ABOUT EB RESERCH:
EB Research Partnership wrote -
EB RESEARCH PARTNERSHIP
We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.
We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.
Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
Partner with us in our mission to further life-saving research.